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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There was always going to be a limit beyond which the SMC could continue its exclusion of other voices - there are number of things that have contributed to the limit being reached, of course the Guideline itself has moved things along but the institutions that back the SMC aren't going to be...
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    But 'you' didn't think it collegiate to ascertain what the other parties to those discussions think before staking your particular claim ?
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Which raises the question "if the NHS isn't using GET, then what is the evidence that the use of this 'other' treatment is of any benefit ? Edit to restore quotes
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    United Kingdom: Sussex & Kent ME/CFS Society News

    Study involving 2 of the speakers: https://www.s4me.info/threads/fibromyalgia-and-me-cfs-an-interoceptive-predictive-coding-model-of-pain-and-fatigue-expression-2021-sharp-et-al.22941/
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There's a balance to be made between maintaining momentum and analysing what has passed so as to inform progress; I'd always err on the side of momentum. Unless one is very, very good at presenting balanced histories, dredging around in past wrongs frequently comes out as no more edifying than...
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    United Kingdom: Sussex & Kent ME/CFS Society News

    Merged thread What's the opposite of serendipity ? Conference today (Guideline publication day !) organised by the BPS friendly Sussex & Kent ME/CFS Society: Research and Management conference – October Sussex University researchers and specialist doctors are to gather at Malmaison Hotel...
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I don't think this has been posted yet: Technology Networks: Neuroscience news - https://www.technologynetworks.com/neuroscience/news/health-body-scraps-graded-exercise-therapy-recommendation-for-mecfs-355265 The UK National Institute for Health and Care Excellence (NICE) has released...
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    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    A clinician can't just switch a patient's diagnosis on whim - it would have to take place within some sort of process involving the patient and within which informed consent would be foundational. Changing diagnosis would implicitly involve a change in the treatment and care plan that the...
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    Exploring the scope of homoeopathy in combating the unfortunate consequences of post-COVID-19 survivors based on non-COVID conditions, 2021, Dixit

    Homeopathy is recognised as a real medical discipline in India - which is where the authors are based. It's just a desk review so no real costs in putting this study together but Indian research funds go into this area. https://www.nhp.gov.in/homeopathy_mty I'm afraid the homeopathy belief...
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    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Just to note that my powers of prediction remain undiminished :laugh:
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    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yes. Also, depending on what the public relations thinking is (if any) at NICE, there may be a wish to take the best opportunity for a media splash, in which case avoiding the Budget and COP26 would be essential to escape being drowned by political blancmange, young people trying at least to...
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    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    There's a threatened JR for which no claim has yet been filed and which following the announcements post the round table is redundant in its own terms, at least as presented in the letter before claim. As such it simply wouldn't get past the first stage of JR.
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    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Not sure I have all that much a grasp on anything - but: While NICE has a duty publish and promote its Guidelines it has no authority to make anyone take notice. It is a mistake to believe that the either the NHS or the Public Health services in the UK are constructed in any sort of joined up...
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    The Journal of General Internal Medicine[1][2] is the official journal of the Society of General Internal Medicine[3] The SGIM seems a mostly US based entity and has no obvious links to the UK BPS group, though its 3000+ members are said to be international. When the article is eventually...
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Perhaps a function of the size of the integrated hospital system in the UK - https://www.jrcptb.org.uk/specialties/general-internal-medicine-gim
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    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    https://threadreaderapp.com/thread/1451095654995005445.html Sir Chris Ham Co-Chair NHS Assembly, Chair Coventry and Warwickshire ICS, NED Royal Free London FT, Emeritus Prof Uni of Birmingham. Health policy and management wonk
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    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    I'm afraid this just repeats the lie that it's possible to get ever more efficiency from a low investment system that is facing ever increasing demand. The NHS has been for almost all it's existence the most efficient health system in the world for any comparable country. The US which has the...
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    United Kingdom: ME Association governance issues

    That's the problem with trying to deal with an issue like that on Social Media - the side that feels it is under attack invariably goes into defence mode. I'd suggest the only way - and it may not be successful - to have Findlay disaccepted, will be via letters/email to the Chair setting out...
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    World ME Alliance, was previously IAFME: International Alliance for ME

    This is of no consequence and perhaps it is a sound representational image - but I hate that header photo*. Can't we for once be represented as being active despite the pain (or whatever) - and not perpetually passive ? *apologies to the subject who is very striking and as a photo it is a...
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