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Here are most or all of the replies to comments last time. I recall they didn't tend to alter things much based on comments from the ME charities, but did make some changes based on comments from services such as the Barts one led by Peter White.

This study gave us GETSET Julie:

No definition for recovery was given for this study, but then they didn't publish data either on recovery in this study.

One thing that we don't know from the study as actometers weren't used is whether there was activity substitution, as there seems to have been in some other studies, where people go for a walk (say), but their total activity levels haven't increased as they reduced other activities. This...

I always wondered what (i) graded exercise therapists were recommending and (ii) patients were actually doing.

For what it is worth:

Probably good that people had a long-term perspective, though I think the human mind can be inclined to selectively recall positive experiences and to cause people to somewhat forget negative experiences. A bit of-topic, but I remember swearing to myself never to go to a particular place again...

It's a pity that the 2 people who were too unwell to be interviewed weren't interviewed in some way, though it is understandable that they were not.

It would have been much more interesting if people who had been made much worse or very much worse were included, but it doesn't look like it was possible in this case.

Thanks. Here are original reports in French or Dutch for anyone who wants them. The French report was by far the longest thing I have ever read in French. There are lots of tables which made reading it easier.

Peter White would just like patients to be told that graded exercise therapy has been proven to be safe and can lead to recovery. Having a range of opinions is actually a better situation than the situation if he got his way.

It is frustrating that the impression is given that only ME patient charities are concerned about these issues.

I wonder did a reviewer get them to add the proviso in the second part of that sentence.

It's also uncommon with treatment with CBT or graded exercise therapy, but that is not the impression given my this sentence. "Recovery" is referred to twice, I think, in this paper with regard to graded exercise, even though there is no evidence participants actually recovered.

The sentence in the introduction, listing the effects of the illness on people with CFS/ME: "Loss of confidence and self-esteem" is not something that I think should have been highlighted over other points. Note that this paper uses "CFS/ME", so that's what I will most likely use

Okay, I have read the full text now. I didn't find it particularly exciting, so I'm not sure I would recommend others use their precious time and energy to do so. Anyway given that I have read it, I will post my comments now, but I'm not sure they are predictably exciting. It's a pity that...

https://globenewswire.com/news-release/2018/11/19/1653708/0/en/Atara-Biotherapeutics-Announces-Publication-of-Phase-1-Study-Demonstrating-Clinical-Improvement-in-Progressive-Multiple-Sclerosis-Patients-Treated-with-ATA190-an-Autologous-Epstein.html

Somebody with ME was excited by this on Twitter https://insight.jci.org/articles/view/124714 Research ArticleClinical trialsNeuroscience Free access | 10.1172/jci.insight.124714 Epstein-Barr virus–specific T cell therapy for progressive multiple sclerosis Michael P. Pender,1,2,3 Peter A...