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I think there can be lots of things one can find to do that feel good doing them. However, the question is what is the payback, how sustainable are they, and does it mean one has to cut down other activities.

I'm somewhat sceptical I'm again sceptical

ME & Post-COVID-19 One person's perspective. It is something to keep in mind with advocacy. At the same time, I think one also needs to look at positives so that one gets a true and balanced perspective on what is the best way forward. Getting extra sums of money for research (which could be...

What does COVID-19 portend for ME/CFS? Mady Hornig, MA, MD Columbia University Mailman School of Public Health New York, NY https://solvecfs.org/wp-content/uploads/2020/04/COVID19-MECFS_Sci_Review.pdf

https://implementationscience.biomedcentral.com/articles/10.1186/1748-5908-6-132

To be exact, the quote I imagine you are thinking of was from the FINE Trial.

@Woolie

https://psycnet.apa.org/record/2020-25194-001

Perhaps I needed to be more specific. I don't have any major problems with money from ME/CFS charities being used for post-Covid studies. However my interpretation of this is that is not necessarily what is being referred to, but just general COVID research.

In my country, a charity can’t do things outside its aims. It’s probably the same in many countries. So it probably depends how vague or specific such aims are. So probably not a big worry for most charities with ME or ME/CFS in their titles.

Yes, that could be useful. Though it is worth pointing out that ME/CFS-specific research may also go on to be useful for those who suffer long-term effects of COVID-19.

To be honest, I'm disappointed by this. There is a shortage of funds in the ME/CFS world. I hope other ME/CFS research charities don't follow suit (I don't imagine many will). It could be the case, of course, that they won't use existing funds, but that seems unlikely.

Merged thread Simmaron Research board has voted to expand the foundation’s mission to include a localized effort to mitigate the impact of the #COVID19 pandemic

He was interviewed on the "Inside Health" programme on BBC Radio 4 today: https://www.bbc.co.uk/programmes/m000hfrs

I read “latest round” as referring to the most recent round/cycle rather than the last round in a series of reviews. But worrying it was mentioned in any review.

Somebody from the UK posted this to an ME list I'm on today. They are talking about BBC radio 4 Edited to add: I see that he was behind an expert comment on the Science Media Centre https://www.sciencemediacentre.org/expert-comment-on-treatment-and-recovery-post-covid-infection/. His advice may...

Paving the way – the second generation of e-patients, their experiences, actions and driving forces THESIS FOR LICENTIATE DEGREE (Ph.Lic.) By Therese Scott Duncan Free full text: https://openarchive.ki.se/xmlui/bitstream/handle/10616/47063/Thesis_Therese_Scott_Duncan.pdf?sequence=3&isAllowed=y

------ The rest of this post is copied from my post here: https://www.s4me.info/threads/effects-of-a-short-term-aquatic-exercise-intervention-on-symptoms-and-exercise-capacity-in-individuals-with-cfs-me-2018-broadbent-et-al.4722/#post-96890 --- This is similar to another Broadbent paper...