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The bit about wanting to be in a wheelchair and lines like that would have got someone sacked and unlikely to be employed anywhere else or arrested for hate speech until these people started pretending their manifestos were ‘research’ to ‘cover’ for it. but it’s the same. Shouldn’t doctors or...

I don’t understand how their list can be legal or upheld given point one can easily be contradicted by them not answering your questions satisfactorily at all but by that point they say they’ve got your data snd you’ve got to consent to all of that in order to even see the survey or ask a...

Also when does someone consent - if it is saving as it goes then someone perhaps can’t even withdraw if they start finding the questions more and more worrying ? and yes this is the clsssic paternalist fir severe thing of someone saying ‘it’s ok cos they can do it in bits’ well NO they...

The first three seem pretty unusual too what’s that all about? And am I wrong suggesting the norm for these in most research is different to this?

Here it is (my bolding on the 'drug controls can join in the exercise programme' bit): and also

This is a really interesting 'nub' of it. I've had variations of it, but such is the communication style of the professions that I've learned over time you can't trust what you've been led to think, but also whilst they might 'get' something they think is PEM... and of course even I really...

No worries I more than likely was implicitly thinking that.. just the opposite way around ie that it certainly doesn't help any funding etc for the illness and prognosis to get inadvertently hidden or disguised due to how the system had been set up for so many years. Ahh I think what I was...

I can’t copy quotes from this using my phone - can someone scroll down to the drug management section under methodology and do so if they get there before I’m up to looking at this another way? I’m pretty shocked by it as there is a long list of about 8 meds many of which are hard core (and...

I can’t remember where I suggested people would invest more in research if they knew how grim outcomes are but will re read. what I do imagine is that if GPs are being told CFS last three years max and we all gave up seeing it mentioning our condition to GP - because of how we are treated -...

From what I can see there is no control group of any sort either it’s exercise in an institution, exercise via telemedicine vs drugs. I don’t know the exact appropriate control given the design flaws of choosing to do no objective measures etc too but my goodness this is like the forced choice...

What I don’t fully get is how something can be put on a list so categorically without good science snd case studies to differentiate guven how many and how much the process costs the idea that funding more biomed physicians and support for ME/CFS so you don’t have the ‘just in case’ or ‘maybe...

Just because I don’t know much about this but how is the court system and judges funded in these countries? I know that fir a number of years there has been talk of issues with delays and things to do with judges pay and legal aid snd I’m sure I’m missing more in the Uk I don’t know in the...

And the knock on if you explore the council budgets and how much of it has to go on valid but also ‘contested’ processes in Uk vs how much they have overall. Some are going bust because they can’t meet legal obligations. Knock on effect of more money on this meaning less for adult social care...

Ie tackling this rumour of ‘self-limiting’ and ‘most recover’ probably leading to it getting wiped off medical history im(if it was there in the first place) simply because the BPS model coerced most people to not mention it to medical professionals and ergo claim ‘must have recovered’ ?

100% agree that this point is more important than people give it credit for. Will continue this in a mo, next post. DO need to note that of recent times I've been hearing @Jonathan Edwards note of 'we should all be using ME/CFS' in my head a lot more recently just because we do ourselves no...

I think* (this might be influenced by looking at other papers it might be sitting within) they are trying to map 'behaviour' and use 'sympathetic activity' as some sort of indicator as to whether people have chosen to exert less effort (when they got tired) vs 'push through'. If you look at...

precisely. there should be someone asking why someone would actually do a forced choice of treatments that don't in this kind of research? there surely should be something of an ethics issue - either of them needing to be updated (if they hadn't anticipated someone would do something like this...

Given what I've seen from individual's accounts and hear from eg people in BACME and beliefs of those who either are BPS or are being told things by BPS it has struck me that there is another useful, but probably more difficult campaign after this. Because length of time vs disability level is...

There is the following paper from Bray et al (2012) for example: Cognitive task performance causes impaired maximum force production in human hand flexor muscles - ScienceDirect That has some interesting references, but I can't see 'in full' (but a bit more than the abstract) which looks at...

Just adding this paper as a link: Endurance time of grip-force as a function of grip-span, posture and anthropometric variables - ScienceDirect "The results indicate that the endurance time decreases significantly as the grip span deviates from the optimal in both directions. On the other hand...