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in fact on that last para - where people think claiming ‘they had a belief [that instead of being ill and needing treatment as per guidelines these people had false beliefs and needed to have their freedom removed and physical needs ignored]’ is valid. well to me isn’t THAT the line where said...

It is very sad because if you think for example about the common connection/source of ME/CFS being EBV/glandular fever. It feels one that medicine could easily have been properly working on over the last however many decades? I think some people mention now that there are actually antivirals...

I think the issue is the gap in expertise. People were foolish to think that allowing the old staff - who had the opposite of expertise and needed de-programming of their false beliefs before not just learning knowledge but critical thinking and science etc - in place. And letting them...

the therapists who won't learn about the condition dead-headedly insisting they get to be the one planning someone's life intimately because they know better. It is just the madness of the mindset.

Well no it sounds like just as they destroyed psychology and mental health proper from moving forward to move it into transdiagnostics they can throw any old thing at to ‘calm and control the people’ so they are wanting to move into medicine not doing diagnostics this is all about an allergy to...

According to what they would claim is involved with psychosomatic (expectations) makes no logical sense. those without a test will be those who anticipated when they got ill that there would be no need for a test because all will as per a cold be fine after a few days of sniffles and those who...

And it appears they’ve persuaded RCP that’s ok people are happy to harm us as long as the situation allows them to not have to face up to what they did or take responsibility for it

:laugh::laugh: the sad thing is... what a life she has, now if only they'd step back and help us to be able to get some medical care and research breakthroughs ie actual treatment then I think there are a load of us who'd just go off and do any of these without any of the rest. The fact we...

it seems they just are a bunch who cant think outside the behavioural model. Very old-school/fashioned underneath it all. they can come up with different words in their imagination why it might be that their behaviour just needs fixing with behavioural training, vary how they sell the carrot...

To be fair they let some of their more obedient patients turn up to do a poem or a song to the audience..

of course she is pro-GET Looks like she would need to change the name of her company from 'Vitality' otherwise her bio on: Our team — Vitality 360 "Jessica is the Founder Director of Vitality360. Her vision was to create a range of personalised therapeutic services that provide extraordinary...

OK I had to double-check but this seems to be potentially Jess Sands who is running these sessions: Jessica Bavinton Our team — Vitality 360 you'll note it is Jess Sands (Bavinton), Founder Director of Vitality 360 WHich is the same name as the physio from the ME Association article...

and for the 'sleep' presentation: Ms Kirsty Vant (gold.ac.uk) "Biography Kirsty Vant is a public health nurse and CBT-I therapist, she is currently completing a part-time psychology MRES. Kirsty is interested in the relationship between health, well-being and sleep, she is currently...

Invited in by a bunch of people metaphorically chasing us with a stick as we try to escape saying to outsiders 'the bastards don’t know what’s good for them honest, we do this because we care, why do they keep saying what we do harms and doesn’t work the horrible, mad, scroats'. At least they’ve...

Here’s the other thing I don’t think BACME members do want to save us or help us - it's never been about the people or patients (just pawns). I don’t think that their programme even reads like that anymore I do think they are deluded by their own sales spiels and their job titles saying what...

I think there was another item/session of another conference where they used ‘ly’ at the end of Nice I couldn’t be doing with it at the time but of course it’s two fingers up at Nice they mean ‘sort of adjacent and nodding to’ at best. To me it smells / sells like people with a supply-led/...

Someone on bacme has a mate or relative wanting to set up a business in it?

If we really wanted to push it the you could finish by asking for a charter of adjusments / behaviour / ethics for ME - I think it’s been mentioned somewhere in a slightly related form and could include thing like a committment towards behaviour/list of adjustments that allows a fair...

They are linked to not requiring that the psychiatric profession understand autism properly - just like health conditions if a patient has one - they should be capable of understanding what is explained by these in calibrating any assessments if there were potential comorbidities and knowing...

I think they can. The ‘new/breakthru’ of SSD is that unlike its predecessors they don’t need to be free of such other conditions or prove such symptoms aren’t indeed caused by them …. Just be ‘anxious enough’ even if you did have a really bad cancer and other illness etc