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Dr.Jonathan Edwards reminded me that OI causes low BP so I don't have OI. My BP has been normal my entire M.E journey- 33yrs. The orthostatic impairment started after I had a relapse from taking immune modulators reactivating EBV and HHV6. That was 10yrs post M.E onset. Maybe I have...

That 9 months timeframe is interesting. I've read several accounts on X from pwLC saying they improved completely after 9 months. I felt completely recovered 9 months after my sudden viral M.E onset in 1992. The endocrinologist who did the thyroid scan told me I would most likely recover...

I don't think that post 30 days of having Covid would be a good indicator of having Long Covid. My RHR was up at least 4-6 months after contracting Covid. I didn't return to my baseline for at least 6-8 months.

Abstract To better understand the impact of Long COVID on an individual, we explored changes in daily wearable data (step count, resting heart rate (RHR), and sleep quantity) for up to one year in individuals relative to their pre-infection baseline among 279 people with and 274 without long...

The direct-to-consumer medical testing industry is booming, with the global market predicted to reach more than US$9 billion by 2033. Genetic tests are increasingly available—with ten new ones entering the market every day—as well as biochemical tests for markers associated with health or...

Stand-off at A&E . . . Frustrated patient was involved in a stand-off with staff in a busy A&E after his friend brought in a mattress for him to lie down on. The makeshift bed was dragged into the middle of the emergency unit at Ashford’s William Harvey Hospital as the man grew tired of...

My concern living in Canada are the long wait times in the ER, over 15hrs+, patients are choosing not to go. I would chose not to go unless I'm transported by ambulance for a very serious issue. A nurse on X wrote recently that she left her shift to go home and came back the next day to...

No one who weighs 130lbs should be taking weight loss medication.

I'm not sure where to post this. Kate Moss' half-sister Lottie, 26, says she ended up in the hospital after using Ozempic that she got from a friend. NEW: 26-year-old model Lottie Moss overdoses on Ozempic, says she was rushed to the hospital and is now warning people against using the drug...

Full Title: Bridging the Diagnostic Gap for Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders: Evidence of a Common Extracellular Matrix Fragmentation Pattern in Patient Plasma as a Potential Biomarker, 2024, Marco Ritelli et al ABSTRACT Diagnosing hypermobile...

Another group of chronic diseases that are linked to antibiotic use are IBDs. Recent epidemiological studies have provided a strong link between antibiotic use and risk for development of IBD, in a dose-dependent manner. Here, we hypothesized that antibiotic use might lead to development of...

Abstract Antibiotic use is a risk factor for development of inflammatory bowel diseases (IBDs). IBDs are characterized by a damaged mucus layer, which does not separate the intestinal epithelium from the microbiota. Here, we hypothesized that antibiotics affect the integrity of the mucus...

Here is the first randomized trial to show that an antiviral can prevent Long Covid. In the PANORAMIC trial, people randomized to molnupiravir had less risk of Long Covid than people who received no antivirals

LINK

Abstract Background: Spontaneous intracranial hypotension (SIH), a treatable condition that stems from spinal leakage of cerebrospinal fluid, usually presents with orthostatic headache, nausea, vomiting, dizziness, and tinnitus. A subset of patients, especially those with sagging of brain...

The study is enrolling people with ME/CFS, LC and chronic Lyme as well as healthy controls. Enrollment for this study is expected to close on Tuesday, April 1, 2025 What we are studying Why do some people recover from viruses and others don't? What happens biologically that make viral...

A physician-scientist giving treatment and medical advice on X based on a study. So many replying asking about this protocol and whether it's safe for someone with factor 5 leiden/ predisposition to blood clots. :unsure: McCullough Base Spike Detoxification--Does Not Rely on Nattokinase...

They've done studies using the term "type 3 diabetes" to describe Alzheimer's that involves the brain and has molecular and biochemical features that overlap with both types of diabetes.

Jarod Younger was saying on youtube recently (2024 Stanford ME/CFS meeting) that different working groups are seeing subgroups with tests showing different pathologies.

The pathophysiology of delayed PEM biomarker would be very useful. Early signs of molecular changes that occur that could possibly prevent harm and worsening before they occur would be very helpful.