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I think we can be reasonably confident that anything based on ginseng root will be completely useless. I suspect nine hundred and seventy three different diseases have been treated with ginseng and as far as I know there is no evidence that it helps any of them. I agree that if we really want...

Maybe someone should study the microbiota of the researchers involved?

Having read the press release I really cannot see what can be objected to. It points out very clearly that not enough money is available for ME research. It is very positive about what has been achieved and I think that is just normal courteous behaviour when lots of other people haver...

Ring fenced funds are no good if they just go to rubbish projects. I haven't seen projects really worth funding until very recently, with the exception of the ME Biobank projects. I agree that CMRC has been inefficient but I do not see that as the fault of MEA. The policy of hanging in with CMRC...

I am really not quite sure what the beef is @Cinders66. If the MRC project gets funded there is no need to wait 8 years. What people often do not realise is that funding tends to be obtained after the key work has been done to make progress. Until funding is announced nothing will happen but I...

All those examples fit nicely into my definitions if you read them without bending the words Duncan.

I agree 'a disease' is not very appropriate for ME as yet and may never be. There are various implied meanings for 'a disease' but I don't think ME really qualifies for any of them. That is my reservation about SEID. In general 'a disease' is used to imply either a single common etiological...

The same people are working hard to get the MRC project turned in to a reality. I agree this is only a slice but in my view likely to get better value for money than a lot of other hand outs.

I think this is a bit unfair. Considering the total amount of money sloshing around the two countries £200,000 is pretty equivalent to 1.5M$. I personally think the choices of who to fund are also very sensible. I am particularly pleased to see Keith getting support as he has worked very hard to...

SS-B is also called La and SS-A is also called Ro. It is generally agreed that although antibodies to both are associated with Sjogren's it is the anti-Ro antibodies that are directly relevant. The problem with these antibodies is that on their own they do not mean much. Moreover, even having...

I agree that the establishment approval of providing GET contributes to the FII problem. When I said GET did not give rise... I was intending to mean in the way that things like IV saline do. I tried to point out that this is a problem of two EQUALLY WRONG approaches colliding with the child as...

I am not sure it means anything much. It does not make any sense to me. If a problem is due to brainstem compression it is not due to a metabolic defect and vice versa.

It looks to me the right sort of study to do. I find interpretation of MRI very hard and need to look at the details. But I think it is worth us going over this very carefully. It may be very important.

I am not blaming parents. I am blaming physicians who use untested and implausible treatments. As indicated there is absolutely nothing reasonable about giving children IV saline. It makes no more physiologic sense than homeopathy and it can be significantly dangerous if a mistake is made. I...

I think it would have been better for AfME to say nothing at all rather than sound like they are trying to smooth over ruffled waters. The statement: It’s essential that, when questions or concerns are raised, researchers have the opportunity to respond, through appropriate channels like the...

I am not sure about that. Increasingly when a do a citation list in a paper I find myself just putting URLs. Key bits of information are not necessarily in journals or books. I think something on the net is 'published' although that may not be what was meant in this case.

Absolutely. I guess a more positive way of putting my thoughts would be that this is a really crucial area to investigate and assessing activity-monitoring devices is something I have tried to encourage researchers to get involved with, BUT patients will have absolutely no way of knowing what...

Hi @Cillian Dudley, But is it more than market research for the device in reality? No doubt you hope it will be useful to people but if the device is completely useless, which as far as we know it is, then how do you make any sense of people saying they think this or that information is useful...

Lack of funding is never an excuse for supplying inadequately tested treatments - which is fraud. Nobody forces people to sell bogus medicines.

Actually extremely useful from my perspective but now redundant. Thanks.