Search results

No worries, I read it that way!

I think you have to click on the tabs for different pages. At the top “data sheet” on a blue-grey background

https://www.nice.org.uk/guidance/ng206/resources/baseline-assessment-tool-excel-9265185613

They did indeed say that. However, it’s only a guideline.

It’s here https://www.nice.org.uk/guidance/ng206/resources/baseline-assessment-tool-excel-9265185613

I really hadn’t thought that I “should” of course be lying flat! Of course no physio will encourage lying on your side. Having a good think about different configurations as well as different furniture options.

Well this is going pretty much as I expected…

Hi I’ve been trying to fill one in (got an excel download which makes it straightforward) although I’m getting a bit disheartened because it’s supposed to be completed by a Dr, and reviewed annually. I think the GP wants the ME clinic to do it, but they’re not going to, because they’re run by...

Can’t do recliners - I have pets, lie on my side, find then uncomfortable, hence seeking a source of assessment or info on how to lie, Ineedto be horizontal more than vertical

Good call! I know a lot of pwME are “sofa-bound” and we should have advice on how to do that well, I’ve been searching all over and I think it’s a real gap.

I spoke with Occupational Therapy and they said they don’t cover that sort of thing, but try community physio. I have to say I think daybeds look really uncomfortable and bulky, think I’d prefer a normal bed!

Does anyone have any advice about how to lie down/recline well? I lie on the sofa around 10 hours per day, and I’m not sure it’s ideal for me to be lying/propped on my side. However I like to leave my bed for sleep only, due to sleep hygiene. Plus I prefer to spend the day in my kitchen/living...

Oh -graded exercise. For my Fibromyalgia.

Phenergan! And no caffeine.

No just made my ME worse! Actually it was in an old part of Bart’s where you had to walk up a huge staircase, probably an early ATOS prototype (you walked up the stairs, you can’t have ME) It’s freaking me out now, at the time I’d put a lot of faith in him and now I’ve realised who he is

Hi all I was reviewing some ME history and PACE trial stuff last year when it suddenly hit me -That Peter White was the Peter White I saw at Bart’s in 2007. I had mild ME at that time and was still working. He diagnosed me with Fibromyalgia. He asked a really leading question - which is worse...