Search results

How can they answer the bit: ‘and whether that [ANS] responses causes PEM’?

From the little bit of actual results that seems to be included by the penultimate line of the results, noting that seems contrived given the primacy and decency effect it wouldn’t be the last line (is this another classic pay walled content of the article so you can’t compare results section...

This just feels like Trojan horse ‘research’ for certain individuals to propaganda the term ‘unexplained’ and a few of her choice hysterical woman suggestions of ‘factors’ (like ‘distress’) to scan-reading choirs

I dread anything with this name on it the conclusion in the abstract literally makes no semantic sense as a stance I assume because it’s so aimed towards misleading in implication whilst having to skirt ‘content’ that doesn’t exist to support it being missing I’d hope any researcher or lay...

I dread anything with this name on it the conclusion in the abstract literally makes no semantic sense as a stance I assume because it’s so aimed towards misleading in implication whilst having to skirt ‘content’ that doesn’t exist to support it being missing I’d hope any researcher or lay...

Just from athlete speak perspective she’s got this wrong. I talk of jog back recoveries to ‘get fitter’ where you are ‘recovering to do again’ and then there would be ‘proper recovery to perform’ which would be that no athlete would be doing a heavy training session the night before a big race...

:hug:

You’ve probably already tried this but I find the clinical pharmacist at my gp good for asking if there are options for things (and they know if there aren’t alternatives) but also whilst it’s still booking ahead a telephone appointment often less of a bunfight to get an appointment (you don’t...

Has anyone ever been to the ‘facilities management’ or similar department of a large organisation? it’s like walking back in time to the male heavy offices. Where people still often takes lunch at the same time every day And normally somewhere off site or in a basement. Talk about siloed...

To be fair I read an article (non ME) from a wheelchair user describing their experiences when they had cancer. The cancer ward he was staying on didn’t have a disabled toilet or bathroom and other facilities you’d expect eg different height benches or couches to make them accessible which...

Yep they think rather than ‘measuring the gap’ directly they are going to ‘calculate the gap’ but their questions aren’t holistic enough nor specific enough - what level of change and type of change could this question actually pick up?

Says a lot about what I’ve seen the ‘system’ looks like. intriguing because there’s as much chance they all had the same thing but different areas where clinics cared about different things. Where are the ones who ended up with an FND or hyperventilation or whatever some other places were...

Or not having much choice - could there be a connection for some in having to push through due to their job vs those who had work from home type things at the time I think it’s interesting that as makes sense to me the HR is showing difference before the number of steps only starts to be...

That’s interesting that a similar timeframe around the 200 day 9-10month mark seems to be coming up for all of these including steps. … thinking of Paul Garners experience for example

You see I don’t mind this - it makes sense that we don’t want to be requiring people to give over live monitoring data if their lives to an agency. And all the calibration stuff from different apps. so filling in questions where peoples answers can be informed by their own app and experience of...

There is a big flaw because I would need a ‘very good day’ to even think about filling something in even with help. even when I was moderate my PEM days I was fast asleep or in huge amounts of pain desperately trying to rest. And the difference was huge between just had a week of rest days and...

I’ve no idea which if the specific ‘terms’ I’ve got but I do know I have this all the time not just in PEM . Worse when more ill as most of most days I can’t just sit up and a lot of time I have to be horizontal it’s hard to describe why right now. When I was less ill if I talked to someone I...

Precisely. It could be like when Carson, stone etc used the hoover sign to identify a group who had FND then tested whether the ‘Hoover sign’ was a good differentiator by seeing if it identified those same people from those who ‘didn’t have FND’ . where is the measure that is definitely’the...

I’m just seeing a con in front of my eyes because I’ve done these things of measures properly in my work before and analysed how they flow through properly (thank goodness it was another area where not only was I allowed but these flaws being kept an eye on was expected) because measures can...

This is such a huge concern and it feels like none of the key players are bothered tgat it’s aiming to redefine ‘what the illness is’ by it only being ‘better or worse’ the measures THIS black box method has apparently decided upon it feel like the cup and ball trick whether those doing it seem...