Search results

and those are treatments of course. which have had proper trials in the first place/are known to be safe and have stats already for those who will go into them. so it is monitoring of the delivery of something known to work. with reasonable guidelines being followed for an actual treatment...

Thank you. So the same fundamental error : not using or looking at long term outcomes, isn't what this is going to do well at all And there is no back-up plan even realising that if you don't make clinics useful you are just using the Krypton Factor again to claim 'people have improved' when...

Indeed. I am trying to work out whether the ends are just not meeting due to [EDIT: my] lack of vision and it needing tweaks, or really what this says it can do is potentially covering one thing at the expense of the most important thing? Should this be called 'the clinic assessment...

my first concern is that for those who are severe, very severe and in a relapse then the questionnaire absolutely needs to begin from the principles of the length and specificity of the questions meaning noone is filling out any more questions than absolutely necessary. WHich I don't believe is...

I worry that this is treating still potentially the condition like it is managing 'something chronic' but without the illness part. And potentially 'rehabbing without treatment first' which was what the flaw of the old guideline was and why it was so harmful. Like treating cancer with marathon...

Today I'm increasingly despairing of how the dangerous issues with those very severe haven't had someone/anyone realising it is a crisis of safety. And am so conscious of the 'moments of truth' situation that I think ME has which is where really I think the best and most urgent thing a service...

I think this issue and what is or isn't need for this (new?/ extended?) remit is worth circling back to as a discussion. I'm trying to mentally work out (difficult here because I tend to be pictoral and like a good diagram) what that means this underlies/underpins and where this sits . Is this...

Interesting list. The drop-out issue is one that fascinates me for the CFS research: using the treatment itself as a filter for survival of the fittest. I can't think specifically of what I'd state we'd be looking for there. I'm assuming some of the focus is on outright 'made it up by filling...

Just looked up: A new community rehabilitation and reablement model (england.nhs.uk) and not feeling hugely reassured by "Guiding principles The guiding principles of the new model are: • People requiring community rehabilitation have access to the appropriate level of expertise, based on...

so has this anything to do with the working groups supposedly happening/related to the APPG and following up on implementation for the Nice guidelines? or is it a case of whilst that gets procrastinated then the same people in NHSE just roll out what they wanted to do with us anyway and then...

One thing that intrigues me in discussion of the 'rule-in' signs and calling them 'positive signs' is whether they are actually rule-in and not rule-out? Wikipedia description of Hoover's sign: "Hoover’s sign of leg paresis is one of two signs named for Charles Franklin Hoover.[1] It is a...

Indeed - good spot/point What’s the cliche about the wheel turning or something? Just history repeating same error

Exactly

Maybe, but he does seem to be looking at this from a good number of angles. I'm reticent to without a thorough dive through everything sign off someone as thumbs up but at least his lists of references aren't 'limited'. He mentions that these portable monitors now being readily available has...

I'm intrigued because from the outside it seems like there is maybe a 'hi-jack' (I think someone else used that term, I hope it is accurate) of a term that has been around for quite a while (?) and does need taking seriously by the right people with the right intentions. Which I suspect is...

Or 'bombast'. There are many professions/jobs where the instructions given, certainly by some training back in the day, was that appearance and staying in command was all. For example teaching and being at the front of the classroom you will still find some who have been led to believe (for...

I was intrigued by the second half of the first quote here: Obviously the word 'confident with their diagnosis' is somewhat ambiguous just due to the nature of the word, but can be interpreted when taken with the line 'misdiagnosis of FND is detrimental to prognosis' to perhaps be seeming to...

Yes! Brilliant news if so.

If so its significant fir two reasons off top of my head: 1. any inference by authors that ideas of pacing or potential harm had come from anything ‘internal’ to the pwme, or were a concept related to ‘a condition’ vs it was being ‘instructed’ externally by someone in charge (or said as a...

But there is also in eg marketing/business literature discussion of saliency and involvement. None of which are any insinuation on the 'emotional processes' of the individual, just state that the item in question as presented is more relevant to some than others. I doubt this goes near...