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Seems so: https://www.healthwatchhackney.co.uk/news/mental-health-trust-pulls-out-of-chronic-fatigue-service/

I really hate the term 'living well', it completely trivialises how difficult it is to suffer from a serious chronic illness. There is a big difference in managing ones ill health as best as possible to have the best quality of life you can within the confines of severe pain or severe energy...

Sounds like they've never seen a patient with actual ME/CFS... It contradicts the importance of people being given an early diagnosis and being supported to manage their 'energy envelope'. Given that people are most likely to recover in the early years, are they aiming ACT at people who have...

I am autistic as well as having the severe ME. I had had a meltdown in my first face to face, where I was forced by ATOS to attend an inappropriate venue (a public sports centre) for my assessment. That was many years ago now. I got a home assessment the second time around, although my...

I agree, it's definitely worth involving the MP. I am doing this for my friend too. I involved my MP in my last PIP prior to the face to face. I received a supporting letter from her (and she is a non-controversial Conservative who always toes the party line). Being able to show this letter in...

I am really frustrated by my ME limitations as I would love to help more people. I am currently helping someone with a complex PIP MR case. People should be aware (and it is stated in the B&W appeals guide) that you can submit the MR even after the initial month deadline (which is usually only 2...

The DWP Decision Maker (and HCP who produces the medical report) are supposed to consider ALL the evidence available to them, and seek additional medical evidence if required, so it does sound like you should succeed at MR stage with this additional evidence.

I think what you get with Fightback is legal knowledge of relevant caselaw, that is pretty difficult for a non-specialist to have easy access to.

I think Fightback are good for people who can send them all the relevant medical reports and medical evidence to work through, but less so for people who cannot manage this. They can pick up internal contradictions in an ATOS or CAPITA medical report, but if you have contradictory or poor...

Fightback4Justice offer a MR writing service, but I think they charge around £85 for it. They say they can prepare the papers fairly quickly, I presume that would be if you have the relevant information to hand to forward to them.

This is a really worrying Green Paper. If people in the UK are able I would suggest responding to the consultation, but ensure you word your responses in a way that can't be twisted (the Green Paper clearly cherry picks the quotes from the initial consultation to promote its own agenda, as well...

In England (NHS), the phrase 'severe mental illness' has a specific medical meaning, usually only given to people whose illness includes an element of psychosis. Major clinical depression alone doesn't usually get included unless it has a bipolar element or unless so severe the person has been...

Someone should suggest that the GRADE system (and any other such tools) automatically should rate any research that doesn't provide open access to its raw data, as 'very low'. Wonder how that would affect future research and future Cochrane reports....

On this tab it describes exercise as a 'miracle cure': https://www.nhs.uk/live-well/exercise/exercise-health-benefits/ Again, there's no warnings about exercising when suffering any chronic health condition, and no links to the evidence for the causal claims made.

Full letter here: https://www.england.nhs.uk/wp-content/uploads/2021/05/B0497-GP-access-letter-May-2021-FINAL.pdf

Seems to be an issue across the NHS, if someone is doing research into how A&E are dealing with patients with severe headaches. It might be worth you emailing this researcher with your recent experience.

So, are NICE going to review all the papers to check whether patient harm was adequately measured, recorded and followed up too (including long term), and then downgrade or reject the research accordingly? Pretty sure if they were to do this they would end up with very little research to assess....

Mine are very dark green. These look a slightly different shade of green, actually identical to the colour of green glasses that my eldest daughter was prescribed when she was about 10 (but never really wanted to use). I think Irlen Syndrome must be caused by the physiology of the eye-brain...

Interesting. I had prescription green glasses for my dyslexia/Irlen Syndrome since the mid 90's (I first got them as a mature student at university). The last pair I had made are now very worn and scratched. I'm now trying to find a local optician who will do the old-fashioned light box type...

Given that Gerada, Wessely and other notable names in the BPS community have risen to hold such leadership positions in the NHS and medical colleges and societies, as well as receiving titles in the UK honours system, I think it is very clear what happens in actual practice...