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  1. Simbindi

    Covid-19 vaccines and vaccinations

    Have you tried emailing your CCG about this? Maybe their complaints email. Technically it is NHS England responsible for GPs (as well as the vaccination programme overall), so maybe an email to their complaints team too? This does seem to be happening across the country.
  2. Simbindi

    Covid-19 vaccines and vaccinations

    Relevant for autistic people or those with a learning difficulty, discusses reasonable adjustments that should be offered: https://www.england.nhs.uk/publication/covid-19-vaccination-training/
  3. Simbindi

    Covid-19 vaccines and vaccinations

    Applies to England only: https://www.england.nhs.uk/coronavirus/publication/next-steps-on-the-vaccination-programme-vaccinating-cohort-6/
  4. Simbindi

    Covid-19 vaccines and vaccinations

    I would email my M.P. if I were you.
  5. Simbindi

    UK: Disability benefits (ESA and PIP) - news and updates 2021 - 2022

    The HCPs are aessssed by their supervisor (and employer). They get disciplined if they make too many awards to claimants. If they allow more awards than 'the average', all their reports are reviewed and outcomes adjusted.
  6. Simbindi

    Covid-19 vaccines and vaccinations

    https://www.homecare.co.uk/news/article.cfm/id/1642966/Housebound-are-still-missing-out-on-coronavirus-vaccine-due-to-vaccination-blind-spot
  7. Simbindi

    Covid-19 vaccines and vaccinations

    https://www.hsj.co.uk/primary-care/housebound-people-being-missed-for-vaccination-nhs-warned/7029535.article
  8. Simbindi

    Covid-19 vaccines and vaccinations

    Not sure if this link has been posted here: https://www.gov.uk/government/publications/regulatory-approval-of-covid-19-vaccine-astrazeneca/information-for-healthcare-professionals-on-covid-19-vaccine-astrazeneca...
  9. Simbindi

    Covid-19 vaccines and vaccinations

    Vaccine dosing and spacing (video includes David Strain): This appears to be the data they are discussing: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/949505/annex-a-phe-report-to-jcvi-on-estimated-efficacy-of-single-vaccine-dose.pdf
  10. Simbindi

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Not sure if this written interview with David Strain has been linked here: https://www.dw.com/en/long-covid-symptoms-treatment-support-effects/a-56220741
  11. Simbindi

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    From what my daughter told me, having the Covid vaccine at a GP hub currently can entail up to a hour of waiting around and there are a lot of people hanging around in the waiting room (obviously not everyone has a car). This is something people with ME need to consider.
  12. Simbindi

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    If Strain is involved with the Devon CFS clinic (RD&E) it will be an interesting test case to see how quickly and in what way the service changes when the new NICE guidelines are published. They currently say they base their approach on the 2007 CFS/ME guidelines. They seem to be one of the few...
  13. Simbindi

    Anyone recommend an ultralightweight hoover?

    I have 4 cats (previously 2 dogs as well) so I've stuck with my Miele cylinder Cat and Dog, fitted with a HEPA filter due to my allergies (the bags also have several layers of filtering): They do make more compact models, but the vacuum is very stable when lying flat and due to the design...
  14. Simbindi

    UK: PIP appeals - advice, recommendations?

    Useful ruling regarding reading and budgeting: https://www.benefitsandwork.co.uk/news/4338-pip-reading-and-budgeting-points-for-claimants-with-apparently-good-literacy-and-numeracy
  15. Simbindi

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    They are trying to clock up the world beating record of poor and abysmal quality studies conducted involving a named researcher... https://www.merriam-webster.com/dictionary/clock%20up
  16. Simbindi

    Who Are We Without Our Jobs? — The Cut

    A useful chart to compare out of work benefits with a nation's average income you can change some of the settings at the top, for example to indicate your previous earnings): https://stats.oecd.org/Index.aspx?DataSetCode=NRR In the UK this has been reducing year on year.
  17. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    I don't think it will strengthen her position in the longer term, because she is effectively starting to gaslight a whole new group of patients (those with long Covid) many of whom are smart professionals and are able to see right through her behaviour. Her false claim that she was speaking...
  18. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    I think these individuals are still stuck in the past, when patients didn't have access to information and understand professional standards. For example, how naive of CG to think that her BBC appearance wouldn't be available as an on demand recording, from which a transcript of what she...
  19. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    It is right to correct inappropriate behaviour and comments from anyone on social media, regardless of their health or mental difficulties. But how this is done is key. For example, any teacher would know it is essential to model appropriate behaviour to problem students... These professionals...
  20. Simbindi

    Trisha Greenhalgh on ME/CFS and Long Covid

    While I agree it is much better when patients behave rationally, politely, take the high moral ground etc., many patients have been harmed by medical professionals (this is particularly true of psychiatry) plus simply don't have the mental capacity and/or emotional education to be able to do...
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