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@PhD Student @Bham I appreciate that you show an interest in ME/CFS. Please read this as context, and please don’t make any of the same mistakes. https://melivet.com/2023/08/10/poor-quality-of-me-research/ Also, just because your professor says that something is «good enough», that doesn’t...

«I want to help, therefore anything I do is «to help»». IMO this is probably the most common logical fallacy for your regular Joe. There are probably other ones in play for the BPS researchers and the main people.

This paper is a polite way of telling them that they are terrible at the very basics of their job.

My last take is that it feels like the writers were trying to justify the use of AI, and therefore might have chosen descriptions and phrases about ME/CFS that mesh well with how they want to talk about AI. Creating the «perfect» problem for the tool, rather than picking the right tool for the...

Is the presence of relatively more B cells always caused by a relative increase to the need for those cells (i.e. that something is telling the body to make more of them), or can it be caused by the presences of more building blocks of that B cell, even if those building blocks were ordered for...

I actually meant damage as in structural damage to something, but your interpretation made me realize that structural damage doesn’t have to equal symptoms and that symptoms doesn’t have to equal structural damage. Or relevant damage/symptoms. Thank you for explaining!

There are better and worse ways of doing things, and there’s a threshold along that scale that says «good enough for science». If you make a conscious or unconscious decision to say something over something else, and the chosen way isn’t «good enough for science», then you’re «wrong» in all...

I’m going to ask the newbie questions: Do we have any reason to believe that VH-30 causes any damage, or is this more of a downstream effect of something else? Both? If B-cell depletion doesn’t work as a treatment (neither short or long term), does that mean that the B-cells aren’t directly...

I understand your concern, but I’m not sure I want ME/CFS-researchers that takes it personally when they are proven wrong. That’s partially why we’re in this BPS mess in the first place. We need more quality, not more «anyone’s best». Regardless, ME/CFS isn’t intuitive. It doesn’t fit most...

What isn’t understood? ;) Why does ME/CFS exclude LC as a co-morbidity? I’ve always thought of LC and ME/CFS as two partially overlapping circles in a Venn-diagram. This. Excellent idea! Although members only threads are quite public given the size of this field. However, I can’t think of...

The phrase "if you can't explain it simply you don't understand it well enough" comes to mind. I don’t know if that’s the case here, but it could reasonably be interpreted that way. Nobody can expect anyone to understand ME/CFS completely or even partially, but we can expect researchers to...

No, it does not. That’s why I didn’t label is as PEM-safe, and stated that it is used in an effort to reduce the energy cost of any given activity.

Throughout the history of humans, most people have been wrong about most things. And most people don’t understand the almost insurmountable requirements that have to be overcome in order to prove that something is «known» og «true». Even the people that understand, are prone to logical fallacies...

It’s difficult to change your mind without strong incentives (like PEM). And some just want to be of help, so they end up focusing too much on trying to force or create an improvement.

I was not aware of that context, thank you for letting me know. Seems like I jumped to conclusions, although prior work isn’t a guarantee against future mistakes or inaccuracies so we need scrutiny for everyone (which is what you alway do!) Interesting idea! Although my typing speed and...

It’s probably impossible. And that’s a good argument against contacting researchers. If they want to hear from us, they know where to find us.

«We need to use all of the available tools and work together to solve this». Why is this relevant for ME/CFS? Logical fallacy? «We haven’t found anything yet, so we need a different approach.» More like we haven’t had the funding to dig deep enough with large sample sizes.. «Shit in, shit...

I’m new here and I love this place. Why do people hate it and stay away? I might be naive and idealistic, but I (used to) work in a firm with a partner structure - they are essentially a breeding ground for this kind of culture. During my first meeting with the entire local division, I...

Is it fair to say that this is a good rule of thumb?: You can’t force an improvement, you have to wait for it while avoiding deterioration. This goes for any intervention. So far, I’ve yet to see any evidence of anything that can guarantee an improvement for any given patient, including...

I like his theory because it focuses on something they found to be wrong, and then they try to work around it. It might not be what’s wrong with you, but I’ve heard personal anecdotes about significabt improvements from this method. Although I’ve never heard about major improvements for anyone...