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  1. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Are the prominent medicos who have driven the whole CBT/GET/BPS agenda not also a small, vocal, and unduly influential minority?
  2. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Both the advisory and writing groups in this review need to have a solid understanding of methodology in general, and of the specific issues with its application in this area of medicine, including for safety. The psychosocial school is demanding, and often simply implementing without any real...
  3. Sean

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    PEM is always there, in my experience. It is not something that goes away. What can change is how much it is provoked/exacerbated by misunderstanding and mismanagement.
  4. Sean

    How effective are common medications: ... meta-analyses of major drugs, 2015, Leucht et al

    Proton pump inhibitors definitely work for me, so it is good to see that reflected in the clinical trials. And a little surprising to see that Aspirin has almost no effect on vascular disease and events.
  5. Sean

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Half the battle is getting the criticisms on the formal public record, so nobody in power can say they didn't know, that they were not warned.
  6. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The one thing this review cannot become is a political compromise. This is all about methodology, nothing else. Get that right and the rest will follow. Get it wrong, and we stay stuck in this cesspit. Yep. Medicine seems to have not learned that if you want to find out where the flaws are in...
  7. Sean

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    GET should be tailored to the individual and guided by professionals who are expert in the delivery of graded exercise therapy with the aim of empowering the individual to take control of their own exercise plan and recovery. There is that whole patients are deluded morons who need to be guided...
  8. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    And the effing CDC. Again. So we currently have to simultaneously respond to reviews from Cochrane, NICE, and the CDC. All of them critical, much of it repetitive. Grrr. :mad:
  9. Sean

    CDC Treatment Evidence Review - consultation period

    Yes, that ignorance has to be wilful in the extreme. Nobody claiming to be doing a serious honest appraisal can ignore that stuff.
  10. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    If the research shows anything it is that ME does not respond to any activity, exercise, or rehabilitation in the normal restorative way, but in fact does the opposite, with patients becoming sicker. It is, indeed, the most distinctive and defining feature of the condition, and nobody knows why...
  11. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    In particular, Robert Courtney and @Tom Kindlon submitted influential major detailed comments that Cochrane published, but did not adequately respond to. Thank you for that long overdue and thoroughly deserved acknowledgement.
  12. Sean

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    Who still have serious power and influence. Unfortunately they are not a couple of nobodies with a couple of dozen followers on Twitter.
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