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  1. Sean

    What we're not being told about ME - UnHerd (Tom Chivers)

    Pretty good article overall. :thumbup: Does this model specifically require a viral trigger? Anger is what you get when sick, vulnerable, innocent people are persistently mistreated this way, then blamed when that approach inevitably goes wrong, and finally told they should be grateful to...
  2. Sean

    Long Covid – The illness narratives, 2021, Rushforth, Greenhalgh et al

    ...and a powerful call for action to fix the broken story. Not fix the broken medical system?
  3. Sean

    UK: New health and disability green paper - comments requested

    Yeah, I'm sure they do. Excuse me if I suspect that this is a PR exercise so they can say we did consult with these stakeholders.
  4. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Wessely is very good at talking the talk, but never delivers on the substance.
  5. Sean

    FINE trial patient booklet 29/04/05 Pauline Powell

    Might be worth archiving important documents on archive.today too. They don't delete anything. https://en.wikipedia.org/wiki/Archive.today And of course, keeping copies on your own computer. Basic text, plus a few images, doesn't take up much space.
  6. Sean

    Medscape: COVID Vaccines Linked to Functional Neurological Disorders

    FND involves a disruption in normal brain mechanisms for controlling the body. I wish I could be that certain about anything. overt inconsistency, as typically observed in patients with FND Not sure why inconsistency is so definitive a symptom. Normal human lives are full of inconsistency...
  7. Sean

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Exactly. If you cannot predict responders then you don't have a robust understanding, and we all know where that leads. ---------- https://www.s4me.info/attachments/fine-there-is-no-disease-jpg.14799/ That is beyond disgraceful. It's literally 100% wrong, and in the worst possible way. Also...
  8. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yeah, that was a hard road for me too.
  9. Sean

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Indeed. On balance I think it better to publish it. But nervous about doing that too. :confused:
  10. Sean

    BPS attempts at psychologizing Long Covid

    Would help your case if you could actually establish that this is what is actually going on, and you can actually safely and effectively treat it, instead of just assuming and asserting it.
  11. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    Don't know if we are more at risk of getting COVID or having worse outcomes. But common sense precaution would suggest that, at the least, we can't afford to lose any more function than we already have. So taking extra preventative steps seems wise.
  12. Sean

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    Yes, he might be rather busy saving his empire right now.
  13. Sean

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Wiborg (2010) https://pubmed.ncbi.nlm.nih.gov/20047707/ 1. Summary: CBT does not increase physical activity in CFS patients, as measured by actigraphy. In particular, the self-report fatigue and actigraphy results did not correlate, so there is simply no possibility of CBT having a causal...
  14. Sean

    Article in Verywell:Treating Post-Exertional Malaise in Chronic Fatigue Syndrome

    The urge to get involved and have a life has never gone away. I don't need motivating. :mad:
  15. Sean

    Does the Lightning Process Training Programme Reduce Chronic Fatigue in Adolescents and Young Adult Cancer Survivors? 2021, Fauske, Reme et al

    Furthermore, none of the methods and measures favoured by the BPS school discriminate between changes in perception and changes in reporting, because they are not the same and have different implications.
  16. Sean

    News from France

    :banghead: :mad: We still have a long way to go. :grumpy:
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