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A special thanks to @Simon M. :thumbup: :hug:

Besides surviving, the most important goal for us was to get good physiological researchers interested. The fact that this project is happening in the UK is almost as significant as the fact that it is happening.

Congrats, and thanks, to all who helped bring this into existence. :thumbup:

https://www.theguardian.com/society/2020/jun/23/uk-to-launch-genetic-study-chronic-fatigue-syndrome-cfs "No effective treatment exists." Is The Guardian is finally getting onto the real story?

Every cloud has a silver lining, and COVID's might be that it helps reign in the psychosomatic cult.

:D

What exactly is this demonstrating? People who are sick are more likely to go to the profession supposed to deal with sick people? Diagnosis takes too long? FSS is irrelevant? But this did not trigger concerns about the FSS concept?

>that the effect can last for several years, And, of course, an "effect" is not necessarily a 'benefit'.

>At least seven randomized, controlled trials of individual CBT by ME >that the effect can last for several years, News to me.

The COVID tracing app put out by our government has been a flop. Nowhere enough people downloaded it, there was problems getting to work from the start and it still doesn't work very well, and I think only one contact has been traced by it. The government has been very quiet about it since the...

It may not have started out that way, but it sure has ended up becoming a deliberate cover-up exercise.

Not normally. Though depends where you are coming from. The government is talking about fully opening the internal economy while we still have active cases, and partially reopening the borders (in a not particularly safe way). They still think they can negotiate a compromise with a virus.

We are going to learn the hard way. Australia is about to make the same mistake. It is elimination with quarantined borders, or endless waves. There is no alternative until we have a vaccine.

And this:

She did when – as one of the lead authors – she helped design the 'definitive' PACE trial. It was only after it became clear that they were not getting any positive results on any objective outcomes that they, and their like-minded colleagues, started downplaying, misrepresenting, ignoring, and...

Wakefield, Macchiarini, PACE, and now this. There is a pattern here.

And then some. It is astounding just how protected a species these guys are. Clearly various powers that be regard this, er, project as too important to be allowed to fail. It is anti-science.

I want relevant subjective/self-report/QoL/PROM measures used. But only if adequately controlled by blinding or objective measures. Inadequate control, and failing to adequately account for control outcomes, is how this area of medicine got into the quagmire it is now in. Correcting that is...