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Don't you just love the assumption underlying all this that us silly hysterical delusional patients never considered or tried various forms of 'exercise' or broader activity management strategies. That we just collapsed on the divan at the first hint of unease and stayed there, despite leading...

If I knew for a certainty that a man was coming to my house with the conscious design of doing me good, I should run for my life. Henry David Thoreau

Reality says NO.

Four days since my second AZ. Did get a slight headache or two, and felt a bit worse than usual, for the first couple of days. But otherwise okay now, and overall it was a lot milder reaction than the first shot, which seems the standard pattern for AZ.

Should have got the AZ. I did and can now hear the Universal Symphony, with Aretha singing lead and Ginger on drums.

Much sympathy to those dealing with prolonged side-effects. :hug:

A 'significant role in the PACE trial' doesn't seem like something you would want on your CV. :whistle:

That is because when evidence and logic evaporate, narrative is all you have. This.

Therapy by koan? Demonstrate moving in stillness, young Grasshopper, via the medium of interpretive free-form convalescence.

Yes.

@CRG I certainly support robust epidemiology. And, sure, not all clues lead to solutions. But PEM is a biggie. Like the DecodeME genetic study, looking carefully into PEM is a win either way. Whether it turns out to be a specific mechanism (or at least a good biomarker) that can be isolated...

Just had 2nd AZ, and holding my Certificate of Vaccination in my hot little hand. No problem so far, but only been a couple of hours. Now looking forward to a booster to improve coverage for variants, especially Delta and Peru-Lambda (name?).

1. Just because feature X is not universal (or not consistently presented) in a putative syndrome doesn't mean it is irrelevant. The problem might lie with the existing definition of the syndrome. PEM might be a critical discriminator between different but superficially similar conditions. Or...

I think we need two. The epidemiology, and some way to measure PEM in vitro so that patients don't have to do the 2-day exercise tests.

Yeah, coming on top of NICE and Cochrane things got a bit stretched. Plus when the CDC said they will not be formulating clinical advice based on the review due to a lack of good evidence, that kind of took the urgency out of it.

I note they are using ME/CFS now, not CFS/ME. ----- The deconditioning model swapped out for a dysregulation model. Meh. Apart from any other reason, dysregulation covers an awful lot of ground, without offering much clarity or insight. They need to stop postulating models until they have...

Maybe I have not been paying attention, but Wessely seems to have been quiet lately.

That is seriously disturbing nonsense.

:D

A fair question. Is the Not Yet just a sop to placate critics and deceive the ignorant, while carrying on with the same BPS crap they always have? Or is it a genuine shift to a less arrogant certainty about their understanding?