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It was Karla Soares Weisser who approved the 2019 Larun review update, not Tovey.

I wonder whether palliative care physicians might be willing to get involved. I think you said one of the NICE guideline committee is in that field.

Quoting from this guide to adding editorial notes: ____________________ Decisions and communication Before requesting publication of an Editorial note, take the following steps: consult the Editorial notes policy above; determine the type of Editorial note required; and contact Cochrane...

I agree with what you say, @Yann04. It's very important that cause and effect are not confused. However, there is another problem that papers like this never seem to mention. The questionnaires are designed on the assumption that answers relate to the person's personality or character, not to...

Those sort of clinical trials that are high risk and high reward are for new drugs being tested on healthy people before being tested on sick people. The majority of clinical trials are the later stage ones where the drug has already been tested and found safe for human use, and is now being...

Oh how delightful, so we are neurotic, disagreeable, introverts now. Oh, but hang on, we're only more disagreeable than healthy controls, we're more agreeable than somatic controls. So that's all right then. This sort of 'research' disgusts me.

Commenting on this post from another thread, I have not seen any evidence from any properly conducted controlled clinical trial for Abilify being better than a placebo effect. I agree we have seen some anecdotes on social media, including on this forum, from people who describe significant...

Moderator note: If you wish to comment on or discuss the use of Low Dose Abilify/Aripiprazole as a treatment for ME/CFS, please go to this thread: Aripiprazole - Abilify

Just to add a wider issue that this and other events have raised. The MEA need to, with urgency, change their policy, personnel and practices for dealing with compliants, both internal and external. All we've been told, as far as I know, is in Neil Riley's flippant and disrespectful article in...

I have not attempted to keep up with this investigation into the MEA's actions. However, it is clear to me that it is now past the stage where assurances from the MEA trustees that they did nothing wrong are sufficient. They need to show, with a clearly published document trail including dates...

Thanks for raising that issue of being out of date, @SlySaint. I agree it's an issue to be covered in tackling what to do next, including possibliities of lodging a complaint to Cochrane, and or a Comment to Cochrane and possible complaints to funders and the Charity Commission. It could also be...

I don't think we go into that amount of detail about the content of the review.

FOI asking for numbers seems a good idea. I would like to see it also categorised by whether the comments came from current patients, recovered patients, carers, clinicians or others.

MEA and AfME employ secretarial and other staff who I assume would perform this role.

I wondered that too. Presumably if this was work contracted out by the MEA there should be publicly available evidence of an advertisement specifying what work is required, with details of an application process. If the contract was awarded to a trustee, there should be some sort of...

Note that the 2019 version now has an added notice at the top saying: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/full Exercise therapy for chronic fatigue syndrome Lillebeth Larun Kjetil G Brurberg Jan Odgaard-Jensen Jonathan R Price Authors' declarations of...

Is this research misconduct that should be reported to COPE?

@Jonathan Edwards and @Caroline Struthers, is it normal practice for journals to publish a review article that is exactly the same as one they published 5 years ago as if it were a new review? Is there some sort of publishing ethics body to prevent this?

I think you could submit it to Cochrane complaints.

It's a disgraceful con trick. Also under discussion on the petition thread.