Search results

Ok, maybe the term I'm looking for is 'a code of conduct' for methodology, but one strong enough that it goes to ethics committees as something serious highlighting that where methodologies fail to account for these vulnerabilities in design there will be questions regarding reliability and...

I know certain personality types of 'communication techniques' can basically outpace our conversation/thinking threshold and force/walk us to say things we don't agree with or mean. And hours afterwards even the most assertive of us would be stunned at how someone has managed to do that. But...

I want to bring this up from a methodology perspective which I think is fundamental to studies into ME/CFS past and present. Basically terming, rightly in the context of studies, pwme as 'vulnerable' under certain conditions and flagging that data taken under these without safety adjustments can...

There was a famous moment in the Uk during the BSE crisis when a politician fed his young daughter a burger on camera in front of the press. is that a similar thing?

Things like this all need to be forcibly consigned to a research assessment unit (ie subject under research funding terms) called ‘troping studies’ just so people are at least aware and funding given at least as much to decent psychologist and those who study the impact of such propaganda to...

That whole section to me is a view inside the mind of disability bigotry. shocking and I hope that some decent scientific psychologist, sociologists and studies of political rhetoric/populism start collecting this type of work as manifestos to study and what could be going on in the minds of...

Did he really suggest ACT? So the punchline of this manifesto is the bigotry solution of a conversion course to make the disabled accept the 'hassle' aka whatever harms, consequences and inappropriate behaviour is bundled under that, so those who can't behave properly can what pretend the fact...

Here we go again, I remember one from maybe a year ago using the same 'hassles and uplifts' - and I have big concerns that this is just reframing incidents that will cause PEM by throwing someone over their threshold, just like almost everything else about ME/CFS got reframed into something else...

the poor so and sos with this condition. It really isn't on anymore for dodgy sections of certain subjects to be allowed to continue with made-up personality terms just to slight people with certain conditions. These really are inventions as per psychology with things like 'perfectionism' not...

I'm a bit confused, as I can't access the full article (and also the conflicts of interest they note are at the end of it), what they think is 'managing FND' from this. I was initially anticipating given a scan of the measures that it would be seeing whether diagnosis and treatment improved...

I'm wondering whether looking into old generations of specialisms like Occupational Therapy and Occupational Health papers might be interesting context. When you get more and more disabled and have to go through various processes one thing becomes clear that is hard with ME/CFS and that is...

Some really important questions here I often don’t see raised and often assume it’s because others definitely think bite size chunks vs do it all then rest (whereas it’s been more complicated than that with me albeit so many caveats) I’d love to see an individual thread on some of these...

it’s revelling in cruelty that last one. Yes they each need to be sued, job removed, black mark making them unemployable - which being a disability bigot and harmed should do just as you’d expect for anything else. Something has gone wrong in the funding of the follow-up process that does this...

Clearly a mental health bigot too. Love that people have been misled into thinking with that one that if they use the right term then their insinuation of hatred is somehow acceptable or care. That’s BS it’s clear from this they mean ‘have issues need to be dealt with’. From hilariously the...

There needs to be legislation to ensure those people are properly funded and assisted to do so. And I also think a flaw in too many systems is that the individual isn’t named and able to be sued personally and criminally prosecuted for the consequences of their chosen actions. That’s the only...

Almost word for word what I’ve heard Sharpe say I’m pretty sure. It’s all just vile rumour monger made up crap to wind up and play mind game politics. How on earth did he get away with that and keep a professional job nevermind a whole profession think copying such bullying words is ‘de rigeur’...

I still feel a rub my eyes in disbelief moment when I read the anti-mental health ‘psychology’ (only a psychology in as far as it being someone’s warped mindset ie a bigotry and bps is weak attempts at justifying it with sophism that neither adds up completes the circle nor makes sense) taught...

Good point. I can't read the full text and either way I find this really very potentially worrying at the likelihood that either the article itself doesn't look into whether the difficulties are externally caused by the very paradigm they are likely to push a child into (and ergo increase harm)...

but not to listen to the ones who haven’t ‘recovered’? Interesting q to be asked about when you’ve ‘recovered’ from the me/cfs version of long covid vs ‘it just didn’t last that long ‘long covid’ ‘ and you were lucky enough to get rest in the crucial early months etc sad that it feels like...

Side note but relevant I saw on Fb someone talking about a slide from the Berlin conference that compared approaches where consideration to PEM was used and wasn’t in Long Covid. It looked pretty good but was linked to research yet to be published I think. Does anyone know what I’m talking...