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    State of Mind: Is Long COVID Linked to Mental Illness?

    Bit of a sidenote but relevant to all of these in as far as another problematic assumption underlying how they think even if their thinking the psychological attribution held water. I don't know the correct term, but we need one for these contexts that is above the deliberate ambiguous...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    But also that quote, which I've heard cited a lot and is very insightful, says just as much about the doctors' attitudes. You won't find anything you don't look for. The fact that investigations will be launched if you are male will change the point you attend vs if you are automatically told to...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Assumed despite their being no good evidence of any personality research, it is a non-area, basically parapsychology for the traits she is mentioning. She might as well be talking about spoon-bending abilities. Shocking
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    So many obvious explanations it seems irresponsible these aren't discussed. If someone gets an illness and is dismissed and expected to carry on doing sports and so on vs e.g. the boys having a week off school then the illness worsens and accumulates. Same if walking into a medical centre as a...
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    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Hmmmm, so this is somewhat just demonstrating sexism/misogyny...? and yes who knows if these are 'functional' at all. But the biggie, given it is girls, the elephant in the room given how the ideology/attitude almost leaps of the page in this paper re: 'girls' is that surely there is one big...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    Thinking about it if there are functions that can come up with advice for different severities so that it covers those who are severe who have to speak to try and access essential goods and services then I’d like the charities and support groups and anything else to work with them. It would be...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    On that note, as she mentioned that pathologists in this area could help by explaining the condition better - which is hard for patients to do, but also to be heard/believed on. But I have realised that she isn't actually one - so the classic question of whether there is actually such a thing as...
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    A Comprehensive Evaluation of Multiple Sclerosis-Related Fatigue with a Special Focus on Fatigability, 2023, Nicolas Royer et al

    Am I being obtuse here but is the fact that this has to be done almost like those who claim that wearing FP3 facemasks vs not as a recommendation for an individual who might be going into a risky situation couldn't be done by ccommon sense and engineering but required inference-based 'RCTs' to...
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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    So that latter paragraph is from him? what a contradiction to everything else, that is more recent, above it that seems to be about the same principles and context and yet rather than 'playing the ball' we've got what seems to be him burying in 'playing the man' and distraction criticism?
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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    and they still haven't effectively worked out how to prove they exist any better than when they were last hounded out of the subject of psychology for not being psychology (other than individuals own psychologies - which can just be delusions and ideologies and things like misogyny or sexism...
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    Letter: Disrespectful language about patients with long COVID 2023 Pelosi

    :wtf::eek: this is some shapeshifting manifesto. Talk about how to make groups 'untouchables' whilst claiming it is 'in their interests' and you are helping. I always note with said people how little time they must spend on creating and refining actual 'help' they claim their intention is -...
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    Long COVID: The impact on language and cognition, 2023, Cummings

    I've had to scan through bits, so some parts in detail then back and forth due to how I am today. But, heeding the last paper had some concerns flagged that I will go back and look for on another read if I remember, this is needed stuff. THe approach of history-taking and testing and noticing...
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    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    Important also that this sort of thing is put out and expanded on further in research so that adjustments and action-consequence is made clear in descriptions of the conditions and things like workplace policies and probably things like where people go into hospital and need to be away from...
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    Questionnaires - design, validation and use in ME/CFS research - discussion thread

    Worse than that, it has now been at least a few decades since scientific psychology realised that all the 'intelligence' stuff using things like IQ tests was not only racist but useless due to it measuring cultural issues and areas that white natives at good advantage would have drilled into...
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    Bruce Wampold: How psychotherapy works / The dodo bird verdict

    You are 100% correct in pointing this out. I guess it all comes back to what they are actually measuring with the way they do their RCTs in this area (and the allowing the methodology to mean teaching to the test and drop-outs and so on) vs what they claim/think/believe they are measuring...
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    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    Yep I don’t believe any of it, what I do believe is the power of those who rewrite someone’s narrative and feed it back to them. And how such brainwashing shouldn’t be happening without proof it helps not harms given it us being directed at probably the group most vulnerable to it due to power...
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    Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome 2023 Bakken, Strand et al

    yes it is one of those ‘services with no use and no customers’ which is why they sell indirectly to those around patients by inciting them to push their loved ones or employees into it. parasitic is the correct term. In the actual health profession I think it’s a weird issue if not wanting to...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yes forms like this often have tables collecting info on these characteristics for monitoring of minorities of equality and yet no standard exists for the condition itself
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    This is so important and I have real bee in my bonnet about the severe being properly included with design of research and patient input focusing on being doable for them and not the other way around as there are accessibility issues. Services need to be built in the more severe and experienced...
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    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    it is a fair point re demographics that you want included too: those who are more severe often get implicitly cut out by things like this as even a long-seeming deadline would require a lot of pacing and they’ve a harder to describe situation, those with more experience would also need more time...
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