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If Long Covid Advocacy is right in their view then I doubt we will see a retraction any time soon.

Part Two of Long Covid Advocacy’s Wessely Files is now on line: The Wessely Wizard of Oz see https://longcovidadvocacy.substack.com/p/the-wessely-wizard-of-oz?utm_source=post-email-title&publication_id=1492584&post_id=118971331&isFreemail=true&utm_medium=email [edited to add an additional quote]

‘Fixed term benefits’ or ‘time limited benefits’?

“Panahi said the poisonings have been caused by commercially available chemicals and cannot be transmitted because no viruses or bacteria are involved.” Even though there may be no infectious agents involved, toxic chemical exposure can have long term consequences. There was the recent Korean...

Change.org have a petition Urgent Call for International Community to Address Poisoning of Schoolgirls in Iran https://chng.it/ZtDVxn5Nq2

I think that is the point of such comments. Even forty plus years ago, patients reported automated computerised psychiatric interviews responding with repetition and to key word triggers as being experienced as more understanding and empathetic than actual professionals. So it is hardly...

We really lack good studies that could definitively answer these questions on prognosis. Do the people that recover in the first few years have ME or are their symptoms confused with a transient post viral fatigue? Are the people that seemingly recover at risk of subsequent relapse? After some...

Great to see an increased rate of donations over the last few days.

With each previous round it looked as if the total was not going to be achieved, then there was a last minute surge, let’s hope that the same will happen this time.

If this actually intents to convey that Long Covid can be assessed and diagnosed on the basis of a single 15 minute consultation, God help any children receiving what these authors regard as medical care.

We are damned if we do and damned if we don’t. We are blamed for doing too much and judged for not doing enough.

Long Covid Advocacy are doing an excellent job at calling out this mess.

Very interesting the differences from other countries.

Part 2 is now online Not Reassuring – the response to the formal complaint about the Long Covid paediatric study, CLoCK. Part Two - The CLoCK Files, the crisis in paediatric Long Covid See...

The paper does not seem to say what the placebo was made up from. All I could find was “matched placebo which were identical in colour and flavour (orange) with a closely matched aroma and appearance”. Without being aware consciously of what was and what was not the active treatment and what...

Is it worth passing this on to the MEA (@Russell Fleming ) given they are seeking to monitor the compliance of UK specialist services with the new NICE guidelines.

I tend not to take such announcements seriously as so many have been made in the past, but come to nothing. Even if someone has got to the beginning of understanding the aetiology of ME as @Kitty says I “find it hard to get excited because trials and treatment approvals take years”. Even if we...

One of the worrying thing about this is how good they will be in knowing when to pass patients back to doctors, particularly in patients with long term conditions where there is already a dangerous assumption in many professionals that taking patients symptoms seriously promotes ‘false illness...

The CFS Clinic and Service pages read better than the CFS title might lead you to expect. The Hospital webpage says this of Professor Vinod Patel And Warwick University says this of him

Not very with it today, but it is worry that they still call themselves a CFS clinic when the new NICE ME/CFS guidelines have been formally published for some eighteen months (29 October 2021) and were available in draft form well before then.