Thinking in historical/evolutionary terms, I suspect in most periods of history or even in a different contemporary culture I would have died relatively early on in the course of my ME, if not already eaten by the wolves, not directly from the ME but from another infection taking advantage the...
I retrospectively now believe I had OI issues long before I was consciously aware of them.
I was not aware of any issues around being upright, though I was aware of being less confident in relation to balance, feeling less confident climbing or totally freezing when walking on a steel net over...
This implies, if I am understanding correctly, that PEM is somehow a normal bodily mechanism for self protection, such as normal tiredness is a mechanism to promote sleep or blinking to protect the eyes. We would then presumably expect to see it in a number of different situations unconnected...
Also partial knowledge, too many intoxicated scientists out there:
“A little learning is a dangerous thing;
drink deep, or taste not the Pierian spring:
there shallow draughts intoxicate the brain,
and drinking largely sobers us again.”
Given our current definitions of ME are purely symptom based, if someone who has ME turns out to have a mitochondrial related pathology that surely does not necessarily supersede the previous ME diagnosis. Rather you could argue,
if it turns out everyone with an operational ME diagnosis has the...
Had my booster on Wednesday this week:
1st vaccination AZ - three days of severe reaction like bad PEM including severe headache, eased off and back to normal over a couple of days.
2nd vaccination AZ - only one day of headache and sore arm.
Seasonal flue jab about a month ago - not had one for...
It may be that the current pandemic will provide sufficient numbers of people in similar enough circumstances to make a class action (of the sort that American legal dramas portray, if such exist in the real world) possible.
Though I feel a bit uneasy hoping that sufficient numbers of people...
The big problem is that even if each of us had the services of an understanding and skilled photographer for a week and our personal selections of their out put were pooled and voted on we would still struggle to get a set of photos that all agreed on.
I suspect we would be very hard pushed to...
It is plausible that humans have evolved to function optimally at a certain level of physical activity, all other things being equal.
But we can’t currently say that with certainty or say what level and forms of physical activity might be involved. In terms of human evolution do we even know...
One potential way is to seek to match the patient and normal groups on a factor that is presumed to relate to premorbid cognitive ability, such as level of education or previous work status. So you would seek to find a match pair for each patient to make up the control group, and you would...
You are not trying hard enough with the circular logic. Stigma is the secondary gain. People looking down on you and not believing you means you are the centre of their attention, even if they avoid you and you never see them.
This is the wonder of a BPS approach that enables you to...
Although it is not just clinical experience, but rather the clinical experience of one’s preferred in group.
The homeopath will believe in one set of clinical experience, as does the pharmacist in their set of clinical experience, as does the psychotherapist their preferred set of clinical...
Indeed I would have thought keeping an activity diary could be as likely or even more likely to cause changes in behaviour than a worn measuring device. Over time it is possible to forget you are wearing a device, but keeping a diary is by necessity always a conscious act.
Am I being foolish, but surely by looking just at referrals for Lyme’s assessment it is inevitable that you will find more false positives than missed diagnoses, as people where a Lyme’s diagnosis has never been considered as a possibility are much less likely to be referred for Lyme’s...
Prof Garner tweets “Nice Guideline for CFS/ME derived from activism, not research-from a recovered patient. I have never seen such a corruption of the evidence-informed guideline process.” Though what follows is my attempt at teaching my grandmother to suck eggs, I think it is worth repeating...
Given the use of the term CFS and the prominence of the idea of fatigue, one wonders if this will result in a preselection of very specific subjects, which along with the small sample size makes how they define ME/CFS and which diagnostic criteria they use very critical in ensuring a...
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