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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The American Academy of Physical Medicine and Rehabilitation bought a full-page ad in the Washington Post urging president Biden and the US Congress to "gear up for the next coronavirus crisis, by preparing and implementing a comprehensive national plan focused on the needs of millions of...
  2. rvallee

    Article in Vice: The Medical System Should Have Been Prepared for Long COVID

    The hostile responses from people who strongly believe in this BPS stuff is mostly made up of thought-terminating clichés and other arguments of no substance about things that weren't actually said. I'm kidding it isn't mostly made up of this it's entirely made up of this. Zero argument of...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    New Catch-22 disease, same as Old Catch-22 disease. Or maybe it's the same catch with a euphemistic hat and fake mustache. Also: this is mainly why the alternative medicine industry is so large; health is completely inelastic, the lack of supply does not change how significant the need is...
  4. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Why medical doctors speaking in their capacity as medical doctors giving misleading medical advice on national television is not a good idea:
  5. rvallee

    Breathlessness and air hunger in ME/CFS

    I sometimes get shortness of breath while eating and although I am not in a great shape I would submit that I am obviously not in that bad of a shape. Zero to do with deconditioning, even though of course higher exertion brings it up but if it can happen while at rest it's clearly nothing to do...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Good to see Nath involved. He seems really willing and able to do this, I hope he plays a significant role in the NIH efforts on LC.
  7. rvallee

    Article in Vice: The Medical System Should Have Been Prepared for Long COVID

    I didn't understand it this way. I understood it to mean the prevalence of consults in which a clear cause for symptoms could not be determined. Which sounds about right, as the only way symptoms are acknowledged to be "real" is made through tests and it often takes many attempts to do the right...
  8. rvallee

    Functional dystonia: A case‐control study and risk prediction algorithm, 2021, Stephen, Perez et al

    The term "primary symptom of" appears to be mostly "which symptom has been the focus of one particular physician at the expense of other symptoms". This thing where a "primary symptom" is required is seriously problematic with multi-system disorders. You read those papers focusing on one symptom...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Medical System Should Have Been Prepared for Long COVID https://www.vice.com/en/article/qjpywp/the-medical-system-should-have-been-prepared-for-long-haul-covid-patients-symptoms Touches on the broader issue of MUS and how this is a long-standing problem in medicine. Replies to the author...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is this simply Russian roulette? Oh, nothing to be worried about, just 1-10% chance of your life as you know it being over, no big deal. People spend thousands on insurance every year for things with far lower odds of happening. The ‘long Covid’ time bomb: an interview with Tim Spector...
  11. rvallee

    Decade of progress in motor functional neurological disorder: continuing the momentum, 2021, Perez, Edwards, Hallett et al

    That's why I've taken to label this as a con: it is built entirely on making confident claims and sticking to them. There is nothing else, as evidenced by the fact that the claims are the exact same decades later, the only cosmetic changes being a few spins of the euphemism wheel. Frankly it's...
  12. rvallee

    Decade of progress in motor functional neurological disorder: continuing the momentum, 2021, Perez, Edwards, Hallett et al

    That is not a recognizable definition of progress. The hubris of failing while claiming victory is grotesque in the context of medicine. These people are far more delusional than the worst caricatures they made up about their patients.
  13. rvallee

    Medical School Education on Myalgic Encephalomyelitis, 2021, Muirhead,Marsh et al

    Public academic institutions should not work in secrecy. Frankly absurd. This isn't religion, it isn't restricted for the initiated. This is a huge part of the problem and it makes no sense at all. I can understand some expensive private schools doing that but most aren't, it should be possible...
  14. rvallee

    News from Scandinavia

    I don't think it's more complicated than we have to be wrong for them to be right. So promoting how wrong we are is how they are perceived as right. Not really but they have a purely antagonistic approach with us and no one objects so bullying they go. Normally people should tell them to quit it...
  15. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    Word has literally come out, including from the recent NIHR report and the numerous programs who attempted this, that exercise rehabilitation has failed massively and most are moving on from that to pacing. Greenhalgh suggested this "RCT" (we all know it wouldn't be properly controlled so not a...
  16. rvallee

    Trisha Greenhalgh on ME/CFS and Long Covid

    She's at it again. Hard to miss the pattern that anyone not praising her = abuse.
  17. rvallee

    U.K. National Institute of Health Research review - Living with COVID-19, Part 1 Oct. 2020, Part 2 March 2021

    Skimming the rest and it's better than what came before, still lots of work ahead. Neurological symptoms are still badly misunderstood and seem poised to get lost in the FND black hole unless rational people get involved to stop this. Frankly most of this stuff should have been obvious a year...
  18. rvallee

    ...discrepancies between objective and subjective measurement of the physical activity level in female patients with [CFS], 2021, Vergauwen et al

    To (probably mis)quote something I saw not long ago: I do not question their scientific integrity, I reject its existence.
  19. rvallee

    Outcome Reporting bias in Exercise Oncology trials (OREO): a cross-sectional study, 2021, Singh, Twomey et al

    And sometimes, just sometimes, the authors will literally plainly admit, using those very words, that they cheated to get the outcome they prefer and no one will do a damn thing about it. And frankly I think that's the biggest problem, that the self-correction has been effectively broken...
  20. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oh wow that is absolute garbage. Actually it's the leaky stuff that comes out of garbage. This is what excessive bias looks like and it's completely unprofessional.
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