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  1. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Her own public timeline on twitter suggests she did not exercise for many months while dealing with what she called something like "horrendous fatigue" that she had never experienced before. She exercised after improving, not the other way around. So did Garner. Their own public statements...
  2. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's an opinion letter. This is all they can do, assert their opinion. To me that signals a weakness in their political position right now. Hopefully. It really is telling that the only format they were allowed to be published is an opinion letter. Because that's all this is: their personal...
  3. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    And as someone who has programmed many similar content publishing systems: complete BS. Their core business is mostly digital publishing, it is one of their core competencies. It's implausible deniability. The very nature of information makes it infinitely pliable to any demand and this is a...
  4. rvallee

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    One important question here would be the scope of this conference. Is it just a mutual admiration society for the CBT industry lobby that is BACME? Or does it actually involve other people that can be influenced? Because BACME cannot be influenced, their entire thing is a denial of reality. But...
  5. rvallee

    Defining Post-COVID Symptoms (Post-Acute COVID, Long COVID, Persistent Post-COVID): An Integrative Classification, 2021, Fernández-de-las-Peñas et al

    The pandemic of the coronavirus disease 2019 (COVID-19) has provoked a second pandemic, the “long-haulers”, i.e., individuals presenting with post-COVID symptoms. We propose that to determine the presence of post-COVID symptoms, symptoms should appear after the diagnosis of SARS-CoV-2 infection...
  6. rvallee

    BPS attempts at psychologizing Long Covid

    Ah, but the spoon will only bend if you believe it can bend. Otherwise it obviously cannot bend.
  7. rvallee

    POMME Study: Paediatric Outcome Measure ME, 2020, Crawley et al

    TL;DR: they are testing a new questionnaire. The questionnaire is called POMME, because the only actual work they ever do is coming up with acronyms. The whole thing is a loop, they are still doing the very same things they were doing when they started. People running on treadmills actually...
  8. rvallee

    No Increased Suggestibility to Placebo in Functional Neurological Disorder, 2021, Huys, Edwards et al

    Does the D in FND stand for duh? To circle the point while missing it: Yes, because there is no such thing as a known "organic" disease that has changes or is unpredictable. You know how it goes: you get the flu and day 1 is exactly like the last day, no change in-between. Pure static, no...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The day /r/medicine discovered Long Covid: Is "Long-Hauler" the new "CFS/ME/Fibro/Chronic Lyme"? Haven't looked yet, this forum is generally very disrespectful. But it's useful to know what physicians are thinking. Sad that they are prosecution, rather than defense. Edit: not as bad as usual...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Living with long Covid: 'I can't work, I can't be a mum, I can't be a partner - I feel useless' https://www.itv.com/news/wales/2021-03-10/living-with-long-covid-i-cant-work-i-cant-be-a-mum-i-cant-be-a-partner-i-feel-useless Although long Covid is a new and little-understood condition, some...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    That part is so puzzling, though at least it has the bolded: By what process would an exercise physiologist be able to identify what is happening in our bodies when we crash? By what? Feeling with their hands? Drawing Tarot cards? Astrological sign? The logic here is so bizarre. There is so...
  12. rvallee

    UK - NHS England online tool and clinics for long Covid.

    So much fuss about the Long Covid clinics in the UK. It's an international sensation, people are raving about why this isn't done in other countries. Meanwhile what goes in the those clinics: Not much in the way of people responding with a more positive experience, despite dozens of...
  13. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    This seems fine and normal and only problematic when key stakeholders are not represented, like when no one represented either the patient or even the scientifically literate side in the 2007 guidance. One of many things too open to interpretation, what if there is consensus that patients are...
  14. rvallee

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Wessely is clearly recognized as a medical hitman*, you call upon him if you want to dismiss medical concerns and whitewash the whole thing. His career is defined by failures doing so, calling many things psychogenic that were eventually understood. He is not called in as an expert to determine...
  15. rvallee

    Some long-Covid patients report improvement following Covid vaccine

    Seems similar to how some pwME have their symptoms improve when they have a cold. Evidence would point towards the innate immune system, nothing specific about any pathogen, or even lack thereof.
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid patients 'told to go away by GPs' https://www.bbc.com/news/uk-wales-56346444.amp Aka standard medical practice for chronic illness. Some patients who suffered ongoing health problems after contracting Covid-19 "were told to go away and get on with things" by their family doctors, a...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long-haul Covid patients can experience 'waves of symptoms,' early research suggests https://www.nbcnews.com/health/health-news/long-haul-covid-patients-can-experience-waves-symptoms-early-research-n1259281 Long-term symptoms may emerge in a distinct pattern over weeks and months. ...
  18. rvallee

    News from Canada

  19. rvallee

    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    I am noticing a much more equal balance between sexes in recent studies. The imbalance continues to tip higher in women but clearly not at a 4:1 or even 3:1 ratio, something closer to 60:40.
  20. rvallee

    Clinical Characteristics, Activity Levels and Mental Health Problems in Children with Long COVID: A Survey of 510 Children, 2021, Buonsenso et al

    Background The World Health Organization has recently recognized Long COVID, calling the international medical community to strengthen research and comprehensive care of patients with this condition. However, if Long COVID pertains to children as well is not yet clear. Methods An anonymous...
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