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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    BPS is usually defined as the intersection of psychology and medicine but frankly it would be more accurate to say it is the intersection of politics and the outer fringes of medicine, the place where there be dragons. Without this kind of gutter politics, usually built on the just world...
  2. rvallee

    Functional neurological disorders: effective teaching for health professionals, 2021, Lehn et al

    One thing I'm confused about is whether it is normal for there to be research studies about whether it is possible to teach something to other professionals. That doesn't seem normal at all, in any field or context. There is no confusion over the fact that it is feasible to teach professionals...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Patient forums. Quite early, even. Same with PEM, it was openly discussed within the first few weeks. Most of it borrowed from the chronic illness community, of course. When medicine fails to even give a name to something, people will. And medicine still hasn't bothered doing that so not much...
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We’re facing a tidal wave of COVID-related disability cases, and we’re not ready https://www.latimes.com/business/story/2021-03-08/covid-related-disability-claims-coming Even then, the guidelines required months or even years of evidence from licensed doctors, sometimes supplemented with...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Many ‘Long Covid’ Patients Had No Symptoms From Their Initial Infection https://www.nytimes.com/2021/03/08/health/long-covid-asymptomatic.html An analysis of electronic medical records in California found that 32 percent started with asymptomatic infections but reported troubling aftereffects...
  6. rvallee

    News from Germany

    Translation: Covid19 and the long consequences: under the chronic fatigue syndrome #CFS Hundreds of thousands are already suffering in Germany today. The number is likely to increase significantly due to Corona. Our detailed film about it now on our #MONITOR Channel on YouTube.
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yeah, same, just saw what you probably mean and yikes (and if not the same then double yikes). Ignore and/or block. Some people are just naturally unpleasant.
  8. rvallee

    UK - NHS England online tool and clinics for long Covid.

    Curious if anyone bothered checking the app? It appears to be standard MUS stuff.
  9. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    This is especially relevant given the weird boasts in BPS about personalized this and holistic that. Treatment that is fully unique to the person, which cannot be standardized, and this is something they are finally having to deal with, is essentially useless. At the very least it cannot scale...
  10. rvallee

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    Especially as it systematically leads to: Deliberately. In fact they use it to justify themselves doing more denying research, which itself further stifles relevant research. It creates a cycle of failure, demonstrably. Problem is some failures have a very high approval rating and happen to be...
  11. rvallee

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I don't really know where else to put this but have to share. They really do think we are so stupid we can't even read, I guess. Or more likely they just know there's nothing we can do about it and so there's no point actually pretending they believe in their own crap. It's all just projection...
  12. rvallee

    Persistent Suffering:The Serious Consequences of Sexual Violence against Women and Girls, Their Search for Inner Healing.., 2021, Sigurdardottir et al

    In what way is that different from Scientology where symptoms of illness are caused by the ghosts of aliens past who died in a giant volcano and were sent to Earth to torment the bodies of human beings? (True story, by the way, this is what Scientology is for the most part). And I'm not asking...
  13. rvallee

    UK - NHS England online tool and clinics for long Covid.

    Same junk, different package: One remarkable thing developing over the years has been this bizarre insistence over "highly trained" therapists doing "personalized programs" and then of course a simple app, basically a dynamic pamphlet, produces the exact same outcomes, outcomes having...
  14. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Bit ironic with the trope over how the certain anguish that we will never get better is reinforcing the... whatever it is supposed to be doing. I never once thought that. The shock takes years to take hold, frankly, the realization that help simply isn't on the way. The hope is always there...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This one and it has an interesting approach to separating from ME: it's not fatigue, it's exhaustion. Interesting word play. NHS may face a million long Covid patients after pandemic https://www.theguardian.com/society/2021/mar/05/nhs-long-covid-patients-after-pandemic It will be so annoying...
  16. rvallee

    Abdominal pain in children: the role of possible psychosocial disorders, Spatuzzo et al, 2021

    It's especially insulting to be denied research funding when you look at how much funding is wasted on trivial nonsense. This is basically a very expensive card-sorting thing where the outcome is rated based on whether the cards were sorted in the expected way. The criteria separating the two...
  17. rvallee

    Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability, 2016, Shakespeare et al

    Statistically, about 90% would recover so yeah absolutely they would put it all to their mental fortitude and never look back at those who didn't have it in them. Maybe higher, actually, since they are all financially comfortable with strong personal and professional support. They are in the...
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