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I doubt any such clinic keeps any record on any of those data, at least not in a useful way. I assume this will be similar to the "fatigue" clinics, with every clinic basically doing whatever they feel like doing. But it's good to see activism from long haulers that goes beyond simply hoping...

It really looks as if medicine intends to bury this entirely and either pretend it never happened or push it in the psychosomatic void of doom. Since it's easy for governments to find medical advisers arguing that, it seems that they did. And since the public message is obviously one of...

Heads they win. Tails they win. Sideways they win. Never flipped they win. Endlessly spinning they win. Problem is letting them pretend they won despite not playing. The blame is in a system that lets them do that, frankly expecting people to be better than this in any context is plain foolish...

True. Damning. But true. They have one job. This is the job. Damning. Anyone in health care gonna do anything about it? Nah? It's up to patients? Who have no voice in the system? Are systematically belittled and gaslighted often precisely because of the nature of their disability? Noo, let's...

You got it right. It's not just their conclusion, it's their starting point, assumptions underlying everything. Still is their conclusion, because it's circular logic and the exact same idea behind Wessely's ideology of there being only one "functional disorder", aka the mythical conversion...

Thing is, whenever something shows up on any tests the most common reaction is how this must mean it's not "functional" after all, since by definition functional means no abnormality should show up. This is interesting, though, to pretend that there is physiological evidence for something...

No one is reliably counting Long Covid yet so no way of knowing without a large prospective study. I'm aware of plans to do so but don't think it's started yet. The CDC have said they have no plans to even consider counting LC. Governments want to open up, LC stands against this and will...

And this comes from people claiming they effectively manage those made-up conditions with high success. Who readily admit they have no evidence for it. While also claiming they do. Because nobody cares about consistency, that's what happens when diseases are de-medicalized: it's no one's problem.

What this shows more than anything is that they don't even trust their own results. They know it's not valid research, it doesn't tell us anything about anything. So they simply dismiss their own negative results, an easy thing to do since they know none of this matters. They're selling a...

Especially in how it's always presented: "fatigue was reduced". No, it wasn't even measured, without a baseline and using a non-linear grading of relative meaning framed ambiguously in such a way that the participant is usually not answering the question the same way it is meant by the...

I don't understand how people can debase themselves this way. Just shameless lying and misrepresentation without consequences. But of course the answer is simple: they are rewarded for it. So the people really responsible for this are the bystanders too cowardly to point it out. It's a proper...

Seems to be based entirely on citations for her research and how her work is overhyped, using a machine learning algorithm that obviously cannot distinguish good research from bad research. So essentially quantity and marketing matter, quality does not.

I'll never understand how anyone found this junk convincing, it's far weaker than even the Stanford prison experiment and Milgram's experiment. It's a single case that is completely unconvincing and the facts don't even line up. It takes a completely cartoonish view of human nature to find it...

Asked And answered. Profit-seeking or not, it's to create something for the sake of being able to say that there's already something and it's good enough what more could you possibly ask?

$10M/y is still peanuts given the size of the economic impact. Not even counting the human impact but that's clearly not relevant to anyone making those decisions. At least some of that Long Covid funding should go for dysautonomia, if it doesn't then frankly the whole thing will probably be so...

Chances that they are aware that this is the ME they have vilified and disrespected for so long? That this is the worst-case scenario for Simon Wessely's horrible career, his lies revealed? About 0%. Especially as Wessely chaired the last webinar on this topic by the RSM just a few weeks ago.

That actually made me laugh when I saw it because absolutely speed runners are 100x more rigorous in their methodology than almost anything done in medical research, at least wherever technology can't be used (i.e. everything psychosocial). They genuinely care about accuracy and validity in ways...

Very common in Long Covid so very likely yet another "functional" crap that is actually an immune problem. Many are referred to speech therapists, obviously with little to show for it. These people are completely detached from reality and are either too malicious or incompetent to see that...

At some point this process where several people work for several months evaluating hundreds of patients to check ONE SINGLE THING is going to have to mature because it's the most extreme form of redundancy I have ever seen. Like 99% of efforts are pointlessly wasted simply because everyone...

Alternative alternative medicine: it doesn't work either but it's much more expensive! What problem does that solve? None. Literally all the "benefits" are simply making up for willful neglect. This is like someone busying themselves doing meaningless chores instead of doing their actual job...