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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So it really sounds like a vacuum word, used simply because a correct term has not been agreed on. Bit like how fatigue is used to cover every damn possible symptom in existence, stripping away all meaning those words have. Where there is a vacuum for a correct term, people will use another one...
  2. rvallee

    Psychiatry's modern role in functional neurological disorder: join the renaissance, 2021, Begue, Perez et al

    Unfortunately, they don't even trust their own research findings and no one makes them so they will completely overlook those negative findings and in fact continue promoting them. They genuinely don't trust their own research, because it's not research, it's outcome-seeking. So when they don't...
  3. rvallee

    Quality of life in functional movement disorders is as altered as in organic movement disorders, Gendre et al., 2018

    Wait. Sick people ARE sick?? No way. It's almost like inventing a fake category of "things we don't understand yet=fake" is as a bad idea. Almost, because it's a catastrophically terrible idea stemming from incompetence and hubris. And of course more baggage than a large airport terminal can...
  4. rvallee

    Post-Acute COVID-19 Syndrome and the cardiovascular system: What is known?, 2021, Dixit et al

    This is obviously ridiculous. Why are ridiculous statements so common in medical research? Are these people not aware that most people don't exercise regularly and that deconditioning obviously does not fluctuate or occur from a mere week of lower activity? Or of the circumstances that most...
  5. rvallee

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    Is that supposed to be it? This is the "correction"? Which they specifically framed to misleadingly suggest no harm rather than no benefit? Which is obviously not supported and is not the issue and even less of a correction? I mean I expected nothing but still, wow. These people have truly...
  6. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I'm genuinely surprised they made something out of it at all instead of pretending it doesn't matter. I fully expected this to be overlooked entirely when she wasn't rejected for having obviously biased views to begin with. Small bit of progress.
  7. rvallee

    Clinical coding of long COVID in English primary care: a federated analysis of 58 million patient records in situ using OpenSAFELY, 2021, Walker et al

    Abstract Background: Long COVID describes new or persistent symptoms at least four weeks after onset of acute COVID-19. Clinical codes to describe this were recently created. Aim: To describe the use of long COVID codes, and variation of use by general practice, demographics and over time...
  8. rvallee

    Clinical coding of long COVID in English primary care: a federated analysis of 58 million patient records in situ using OpenSAFELY, 2021, Walker et al

    Definitely not just in England. GPs in England ‘failing to recognise thousands of long Covid cases’ https://www.theguardian.com/world/2021/jun/30/gps-in-england-failing-to-recognise-thousands-of-long-covid-cases The study: Clinical coding of long COVID in English primary care: a federated...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is there a good general one? I've seen some variations of... immune-mediated, immunological or something like that, but they aren't typically used.
  10. rvallee

    Psychiatry's modern role in functional neurological disorder: join the renaissance, 2021, Begue, Perez et al

    Same with CODES. Saw it a few times recently, generalizing CBT to FND. Without rationale or justification either, and of course ignoring the null result. Because what's a null result if not a frowny face downside up?
  11. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Uh, never noticed that. But those are just passing mentions hinting at a question that is not specified. And another one of the mentions calls it post-exertional fatigue, which White usually does. They have clearly no idea what it means, but I'm sure they can argue otherwise for more than a minute.
  12. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's something I noticed that is actually one of the biggest red flags. Typically, scientists argue. A lot. And disagree with each other. A LOT. It can get bitter, arguments on substance and the like. And the disagreements are substantial, they aren't merely preferences or points of view. In...
  13. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    You're right, this isn't good old D-K, it's a special case of Mass Dunning-Kruger. Which ironically manifests through socially spread beliefs about illness. So Mass Projected Dunning-Kruger?
  14. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm getting a sense that inflammation is being used generically to mean something the immune system is doing simply because there is no better word for it.
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's really getting hard to avoid the conclusion that a disease that resolves itself naturally in most cases is basically medicine's worst-case scenario, it completely cripples every process and method normally used. It's just too easy to attribute to themselves this natural recovery, not only...
  16. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Followed by the usual: "no difference in outcome between treatment arms but in-group benefits in secondary measures of blah-blah-blah". I have no idea how such laughable nonsense came to be standard but the fact that hardly anyone sees any problems with it is very much the underlying problem we...
  17. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Good old Dunning-Kruger. Edit: correction, it's a special case of Mass Dunning-Kruger, not the good old singular type.
  18. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    That's odd, not a single GET trial even had any mention or consideration of PEM, they literally don't believe in it. Should be done in a split second. I guess this is where semantics get discussed whether "boom-and-bust" is just code for PEM, which it obviously isn't, and neither is...
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