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  1. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It does, and I suspect the ideas was try and take people off PIP because "support already exists". Except that it doesn't, DFGs are quite specific and don't cover ongoing costs. Same goes for the small aids that people get via their local authority. I think it may depend on the council's...
  2. Kitty

    Personal experience of using cumin to treat PEM

    I'd choke on that! Not exaggerating, either. :ill: Come to think of it, a south Asian friend often makes that—I don't have the recipe and hadn't thought about quantities of cumin. I'm only ever wiped out for a couple of days after eating it, because she lives almost two hours' drive away and...
  3. Kitty

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    Those quotes you posted are so ridiculous I actually laughed. This kind of nonsense is the preserve of the desperate-for-attention, and I'm not going to reward him with mine.
  4. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Another Guardian article about the proposed changes, this time from a psychologist: https://www.theguardian.com/commentisfree/2024/may/01/rishi-sunak-welfare-support-depression-anxiety
  5. Kitty

    Personal experience of using cumin to treat PEM

    I'm quite curious about how you swallow a teaspoon of cumin!
  6. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I'm not sure it is, TBH. Quite a lot of it seems to be more about them imagining that people housebound with anxiety and depression are a bit fed up, and that putting in a couple of grab handles and a raised loo seat will cover all the additional costs of people with mobility problems. Basing...
  7. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Might help to have a look at Frances Ryan's Guardian column for today: https://www.theguardian.com/commentisfree/2024/apr/30/ministers-disabled-people-vouchers-government-groupon
  8. Kitty

    The Agreed Care/Activity Plan

    Exactly. But in some cases a (properly trained) therapist might have a place shortly after diagnosis, helping to guide people through getting a sense of their activity capacity and reassuring them that slowing down is not only okay but strongly recommended. It's always hard, but especially so...
  9. Kitty

    Thesis Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms, 2024, Rekeland

    I guess if the CAR T-cell therapies work out for a big enough proportion of the patients where it's still used, it might disappear altogether?
  10. Kitty

    The Agreed Care/Activity Plan

    The irony is that if they didn't have this completely arse-about-face, it might actually be useful for some pwME. I've had ulnar nerve impingement, probably from learning a batch of reel sets on the whistle. It involves repeating the same arpeggiated phrases over and over to get them up to high...
  11. Kitty

    Anyone tried H2O2 therapy?

    :rofl:
  12. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    There's a chance it'd be a pointless exercise this time, as there may be a change of government in the not-too-distant. There's likely to be some focus on this even if the current opposition gets voted in, but all bets are off on what it will look like and when it will happen. As for the...
  13. Kitty

    Anyone tried H2O2 therapy?

    Maybe we should consider an annual S4ME award...
  14. Kitty

    Anyone tried H2O2 therapy?

    Maybe that was the reason for using it! Bloody marvellous for getting the chlorine smell out of long hair, though.
  15. Kitty

    The Agreed Care/Activity Plan

    But even then, in routine cases it's not normally scheduled as a minute-by-minute breakdown of what has to be done every day, with a planned set of fixed increments devised by a specialist. It doesn't need to be, because as soon as someone with, say, a hip or knee replacement is able to walk...
  16. Kitty

    Closed UK: DecodeME updates, was recruitment thread.

    Blimey, that's a novel approach to research! Seriously, it's great news. Well done to everyone on the team.
  17. Kitty

    The Agreed Care/Activity Plan

    Yep. Where else would clinicians say they're going to take an established treatment protocol for one condition and use it on an entirely different one until there's evidence of harm?
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