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It would be great to come up with a set of brief but telling activities, that could be sent out as prompts to people at random times during the day and early evening, asking (as long as it's safe and feasible where they currently are) to do X, Y or Z as soon as possible. We're all so used to...

I feel a bit useless on this, really. I'm not active on social media (I've done as much as I can, but if you never post no-one follows you), and outside of this forum all the active online and face-to-face networks I'm involved in are wildlife conservation or music ones. I think I've coped with...

Several are in use for Covid, although not commonly—I know this because I've been "identified" as someone who might benefit if they got infected (I've dodged it so far). They're also sometimes used for 'flu. I suspect most people in the UK will never be offered one, because their use is...

I think there's likely to be a lot in this. There's also arguably a good clinical reason for keeping the two separate, at least on people's medical records. Categorising/coding the two conditions for statistical and resource allocation purposes, and treating/managing them are different issues...

:rofl: :rofl:

Yes, that's what I wondered. In some respects I can understand why some GPs wouldn't take the diagnosis further than long Covid. They might think it's unlikely to help the patient or their doctors to call it by another name if there's a strong link to a Covid infection and the symptoms haven't...

Yes, that's a good thought. No idea of the answer, but it would explain something that looked very odd at the time.

I didn't realise there were so few questionnaires from people diagnosed after Covid. I wonder whether they're getting diagnosed with long Covid rather than ME, regardless of their symptom profile? The number of online support groups would suggest that at least some of these folk are proactive...

And presumably, nor will it link scoliosis with ME-like symptoms?

So she knows how to apply rigour, she just decided not to bother with it here by looking at the "evidence" her conclusions rely on.

It's quite hard to imagine another large-scale genetic study getting funded until this one reports, and the results have been studied by other groups. It might find something interesting that could be pursued with much smaller and more specific groups of patients and controls; or it might find...

And me!

They don't mean the smart meter, though. They're not the responsibility of householders, any more than traditional meters are. The article shows an in-home display, a small gadget that if it were on public sale, you wouldn't expect to pay more than £20 for on Amazon. You don't need one in order...

I don't get it—the device in the picture isn't a smart meter, it's an in-home display. The smart meter itself usually shows readings and the main meter definitely does, so unless people are unable to access either of these, how on God's green earth can they can have "no way of knowing how much...

It is a very impressive response. I'm a bit surprised at the 50% rate, I'd somehow imagined it might be more like two thirds or three quarters being invited to submit, but I'm sure that's only because I don't know enough about it. I only know two people personally with ME, so I don't really...

Sadly not surprising in the least, I guess the same might be found in other countries too. It's not only treating physicians who need to reflect communities, it's the senior ones with the most influence on local and regional policy too.

Do we know much about why the numbers aren't as good as we'd hoped? Is it that quite a lot of folk haven't been asked to give DNA because of potential confounding conditions or unclear diagnosis? Or are there substantial numbers who showed initial interest, but either didn't complete a...

Pretty much reflects my feelings too. I suspect that, at least in my lifetime, the discovery of a biomarker reliable enough to gain acceptance might bring more social benefits than medical ones. The importance of that shouldn't be underestimated, though. Whatever chronic illness a person has...

It's not the sort of thing that would very often get tested in the UK, at least by the NHS. I think the logic goes "Well, we wouldn't know what it meant anyway, so..."

These are things that really need to be accounted for in trial protocols. It's not easy—it might even be impossible in a short trial, because any intervention is likely to result in some behavioural changes at the outset—and researchers almost certainly underestimate just how much difference...