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  1. Kitty

    Series of Guardian articles on Long Covid, October 2022

    Good, I'm glad to hear it. Normally, when you research a highly politicised topic like this, one of your objectives is to make a list of What Not To Say Under Any Circumstances. This would probably make the top three.
  2. Kitty

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes 2022, Schutzer et al

    You'd think they might have wondered whether the proteome profile is also the same in healthy people, wouldn't you. Because that would tell them something different altogether.
  3. Kitty

    Series of Guardian articles on Long Covid, October 2022

    I am severely dischuffed. I knew this wasn't going to go well, and it hasn't. My letter to The Guardian this morning: I doubt it'll have much effect, but I feel better.
  4. Kitty

    Covid-19 vaccination experiences

    My experience is atypical, but if someone found a drug that improved ME as much as some of these Covid inoculations improve mine, we'd be celebrating a major development. AZ#2 and the Moderna bivalent have both given me a really significant improvement. AZ#1 was a bit too effective, I felt as...
  5. Kitty

    Covid-19 vaccination experiences

    30 hours out from the Moderna bivalent booster, and no negative side effects yet. Positive side effects have been a boost in energy for most of the day. Hoping the lack of negative side-effects continues, but I know it might too soon for them to have show up yet! :nailbiting:
  6. Kitty

    Chronic illness makes UK workforce the sickest in developed world

    The early retirees I know who've given up work a few years ahead of state pension age have mostly done so because workplaces were just becoming more and more toxic, and they have at least some pension provision to fill the gap. Staff management was farmed out to faceless HR departments who did...
  7. Kitty

    Petition: End assessments and consider disability benefit claims on medical advice alone

    The old DLA system worked like that, at least where I lived. Both my assessments were done by a lovely retired GP who was selected because knew about ME. He was sharp and funny, too, so rather than being an extremely stressful hour, it had its entertaining moments. Second time around, when I...
  8. Kitty

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I suspect that as with a lot of other chronic conditions, it's not currently amenable to cure. If there is something out there that could produce a marked improvement but no one realises yet, it might be because it's a less-than-benign medicine that no doctor would want to muck about with on the...
  9. Kitty

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    I voted for the last one, because I don't really think it's worth experimenting with some things, particularly medicines, outside of a supervised trial. However, pacing in particular is low risk, and I'd feel okay about recommending someone with apparent post-viral illness try it for a few...
  10. Kitty

    (UK) Commission on Social Security

    Just to bump this by way of a reminder—the livestream is on Monday. I checked with Michael Orton yesterday, and the footage will be available on the commission's YouTube channel afterwards, for anyone who's interested but unable to watch at the time. This link will allow you to watch live or...
  11. Kitty

    Closed UK: DecodeME updates, was recruitment thread.

    Are you disguising the top-secret location you're reporting from? (Sorry! :laugh:)
  12. Kitty

    Closed UK: DecodeME updates, was recruitment thread.

    I got my kit yesterday. I meant to take the sample and send it off whilst I was on my way to swimming this morning, but the box got hidden under a book and therefore no longer existed as far as what passes for my mind was concerned. :rolleyes: Tomorrow, hopefully. ETA: added word "send"
  13. Kitty

    Sore throats swollen glands

    I've been trying to find ways to argue this for years, but was hampered by not really knowing whether it would be considered a meaningful sign. It would also be useful to understand whether it's common for there to be a pattern of swelling. For instance, I've known my throat glands become...
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