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I reckon so. As usual, it misses the point that what patients really need is help with all the crap that happens when the rug gets pulled from under your feet, and most of it isn't medical.

My mate (who claimed his name was Myx O'Lydian) used to make up codswallop like this and post it on Wikipedia. I'm wondering if he's at it again.

The issue is that organisations, government bodies, etc now insist on photo ID. My cousin had to apply for a provisional driving licence for her elderly mum-in-law when was widowed, as the combination of an insistence on photo ID and some of the couple's accounts and paperwork only being in...

I hadn't heard about this, but I wonder if the denial was meant to be aimed more at healthcare professionals? I can see why it would be misunderstood as an attack on patients, even if it was actually meant in the spirit of support. People with ME have been pushed into a black hole created by...

That would probably save a lot of money, morbidity and lives...but I guess it also risks creating so many sub- and cross-specialisms that you eventually end up reinventing general practice!

Fair points. Perhaps I should have said something like cynically made-up diagnosis. Because whilst it was initially reasonable to formulate and argue out the BPS theory, deploying it in clinical practice without any supporting evidence—and claiming that just knowing is evidence—is a different...

I was just about to post the following... It's the hijack that bothers me. If doctors recognise a cluster of signs and symptoms for which a cause hasn't yet been found, they will give it a name. If they don't know how to treat it, they will say so. That's one thing. It's quite another for...

This also holds if patients are given a made-up diagnosis. And no level of confidence or authority will negate its made-up-ness.

A reminder that if anyone in GB is struggling for general-purpose photo ID, a provisional driving licence is the cheapest at £34 if you apply online. It doesn't matter if you've no intention of ever driving, and like a passport they last for 10 years. As @Wits_End says, you don't need this kind...

The trouble with that will be the fairy folk, who swap our fuel tank every night for a different one. We wake up with no idea whether we've got a moped, a bus, a car, or a toy train that only moves if somebody pushes it.

I don't think there is. It reminds me a lot of driving a wheelchair-adapted van. They have to reduce the size of the fuel tank (invariably by an unspecified amount) to accommodate the lowered suspension, so you never actually discover what the dashboard indicator shows when you've only got a...

The second description seems to be more common, but people do use and understand terms differently. Rolling PEM is really common in mildly affected people. I had it almost continuously when I was working; I was exceeding my capacity every day during the week, and resting up at weekends just...

B12 deficiency, plus low vitamin D if I don't supplement. (I might have the world's best skin type for vitamin D production, but it also means you get sunburn in England in March!)

I've often consulted VeryWell, it is useful. For major brands it would probably be too much of a business risk to deliberately split production between tested and non-tested batches. I guess there are sometimes compromises made due to supply issues, but it takes a lot of work and a lot of money...

That's impressive. Not as much as the old lady on my mam's estate who cut the chip out of her bus pass and glued it to a magic wand, but still.

It's also muddied by the apparent existence of a post EBV-like group, who have significant symptoms but they do eventually resolve. There's still a major impact on their lives—six months to a year is quite long enough to lose your job or be forced out of a home you can't afford on sick pay—but...

I've thought about this too, but I wonder if symptoms are part of the difficulty. What matters to me is what I can do. That's partly governed by how I feel, of course, but also by an assessment of current capacity and the likelihood of unspeakable payback. I think if I were keeping a record...

You should definitely enter functional fungus and psychosomatic spoons for a prize in the Pompous Parsnips thread. :rofl:

I feel the same, because there were also three of us (though not at the same time). Also, I have two close but unrelated friends that I've shared houses with, and we all developed ME (again, not at the same time). But there three or more cases of all sorts of other things as well, in both...

AKA luck. I agree—it might turn out that there's some fascinating combination of events that are necessary, but it seems just as likely there aren't.