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  1. Trish

    Opinion Long COVID: a new word for naming fibromyalgia?, 2023, Xavier Mariette

    That's odd. The abstract is still available at the link and says it was published by the joural on 3rd November. https://ard.bmj.com/content/early/2023/11/02/ard-2023-224848
  2. Trish

    Long Covid in the media and social media 2023

    Thread on the study: https://www.s4me.info/threads/sars-cov-2-specific-immune-responses-in-patients-with-postviral-syndrome-after-suspected-covid-19-koralnik-et-al-2023.34927/
  3. Trish

    "The idea of rehabilitation needs to be completely rethought for this disease" A qualitative analysis of patients' experiences, 2023, Hammer et al

    This looks like a really important report. The fact that half of the patients, ie over 300, report deterioration should be a wake up call for everyone attempting to rehabilitate with exercise people with PEM, whether diagnosed with ME/CFS or Long Covid.
  4. Trish

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Many thanks to the US organisation Long Covid Families who have added their name to the list of organisations supporting our campaign and agreed to promote the petition to their members. https://longcovidfamilies.org/about-us/
  5. Trish

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    That short article doesn't really tell us anything. It's just a fundraiser.
  6. Trish

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    So irresponsible. Why do they keep doing it? Answer - to make money from desperate people.
  7. Trish

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Looks like Jason Busse is a Chiropractor with science degrees including PhD as well. Not a medical doctor. Treats people for pain and fatigue.
  8. Trish

    Long Covid in the media and social media 2023

    Thread on the paper in the journal Cell referred to in the artice: Serotonin reduction in post-acute sequelae of viral infection, 2023, Cherry et al
  9. Trish

    United Kingdom: ME Association news

    It's good that they are challenging this research, but I don't think there's any research evidence to support this: I know the NICE guideline says it can be offered, but I don't think it should be repeated without the warning that it can also cause harm, as it did to me.
  10. Trish

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    We have several threads on papers by Jason Busse who is on the author list and presumably the professor supervising this research.
  11. Trish

    Core outcome measurement instruments for use in clinical and research settings for adults with post-COVID-19 condition, 2023, Gorst et al.

    Oh good, let's invent another 300 questionnaires and write another paper about them. And another And another
  12. Trish

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    This looks like a rather poorly designed student project. There is no data given about which treatments patients attributed their recovery or improvement to, no questionnaire or other data on how sick they were and how they are now, no info on how long this claimed recovery or improvement has...
  13. Trish

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Of course it's Paul Garner. It seems he is dedicating his retirement to getting as much published as possible to prop up his fantasies that if only we'd all listen to people who have 'recovered' we'd all get better. Any idea of scientific evidence seems to have been expunged from his brain.
  14. Trish

    Patient perspectives of recovery from [ME/CFS]: An interpretive description study, 2023, Hasan, Busse et al

    Merged thread Patient perspectives of recovery from myalgic encephalomyelitis/chronic fatigue syndrome: An interpretive description study Zara Hasan BHSc, Cassandra Kuyvenhoven PhD, Mehreen Chowdhury, Lana Amoudi BHSc, Dena Zeraatkar PhD, Jason W. Busse PhD, Marina Sadik MA, Meredith Vanstone...
  15. Trish

    News from Cochrane

    The link given takes me to 'page not found'. This link worked for me: https://community.cochrane.org/new-cochrane-privacy-policy#:~:text=data%20is%20aggregated.-,Disclosure%3A%20Do%20we%20share%20your%20personal%20data%3F,giving%20your%20details%20to%20us.
  16. Trish

    New Oxford Textbook of Psychiatry, 2012 and 2020 editions - Sharpe et al on CFS

    The 2020 edition seems to have shrunk that section https://academic.oup.com/book/35444 It's now headed Somatic symptoms and related disorders with chapter headings: 129 Deconstructing dualism: The interface between physical and mental illness by Michael Sharpe and Jane Walker Abstract...
  17. Trish

    New Oxford Textbook of Psychiatry, 2012 and 2020 editions - Sharpe et al on CFS

    The 2012 Edition chapter on CFS is in a large section headed Psychiatry in Medicine, with chapters including somatoform, MUS, somatisation, conversion disorder, hypochondriasis, factitious disorder and malingering, neuresthenia etc. https://academic.oup.com/book/24770
  18. Trish

    New Oxford Textbook of Psychiatry, 2012 and 2020 editions - Sharpe et al on CFS

    New Oxford Textbook of Psychiatry Second edition published 2012 https://academic.oup.com/book/24770 Chapter 5.2.7 Chronic Fatigue Syndrome by Michael Sharpe and Simon Wessely https://doi.org/10.1093/med/9780199696758.003.0133 Abstract (paragraph breaks added) Chronic fatigue syndrome is...
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