Search results

  1. rvallee

    Proxy Praxis: How Surrogate Endpoints Can Speed Drug Development

    Uh, well, they can be. They can also be the exact opposite. I guess they must strictly mean pharmaceutical trials because the whole mass of biopsychosocial trials has not actually discovered a single damn useful thing and is in fact getting worse over time. Because of course for trials to...
  2. rvallee

    Trial Report Clinical Improvements Following a Non-Aerobic Therapeutic Exercise in Women with Long COVID, 2025, Miana et al

    I guess it's an approach. Looking at the exercise program, it's a pretty normal exercise routine that healthy people can see significant improvements on, as long as they have slightly above average level of fitness to begin with. It actually takes pretty good fitness and a lot of energy to even...
  3. rvallee

    News from the USA, United States of America

    It's not a perception that can be fully controlled or managed, but it seems that there is a huge problem with how people understand "pre-existing conditions" as basically "were going to die soon anyway", rather than literally anything that can be diagnosed, including things like relatively...
  4. rvallee

    Preprint Evidence of Accumulating Neurophysiologic Dysfunction in Persistent Post-COVID Fatigue, 2025, Germann et al

    Presumably this would be because of higher levels of pre-illness fitness? Loss of muscle mass over years of sedentary life is simply a given, and it's distinct from deconditioning.
  5. rvallee

    UK: Physios for ME

    Physicians have been sold this lie and bought it whole and are sending sick people with PEM and other chronic illnesses that have nothing to do with lack of fitness or a deficit of exercise all the time, so it is good that physios know what to do about it. But unless there is an additional...
  6. rvallee

    UK: Physios for ME

    I have not seen any evidence for the Goldilocks zone either, where everything about the exercise has to be "just right". It's a common trope, always used as an excuse for why this type of exercise at this intensity level on this schedule and coached this way doesn't help this person, but it's...
  7. rvallee

    News from the USA, United States of America

    Sometimes I wonder if after all this messaging rejoicing the good news of how "only" vulnerable people were dying of COVID has led to most people just assuming that COVID killed everyone who was vulnerable and therefore there aren't any left. Which, ooof. But also years of messaging promoting...
  8. rvallee

    Coloured overlays improve reading speed and reading experience in patients with post-COVID-19 syndrome, 2025, Gode

    And it's not worth much without pre/post data, as reading speed varies a lot between people. My reading speed is probably half of what it was. My reading comprehension, probably a tenth. I still read faster than most people. Comprehension has definitely dropped well below average, though. I...
  9. rvallee

    Does symptom perception after negative affect induction differ between physically ill and healthy individuals? ... 2026 Jessen et al

    Yes, it's important to check Thetan levels with the Thetan measuring machine. Or something like that. So, Thetan levels have nothing to do with anything, then. Or not, it's not as if this is any better than ye olde ink blots in a discussion about someone's mother. I genuinely have no idea who...
  10. rvallee

    Preprint Distinct Symptom Clusters Reflect Pathophysiological Mechanisms in ME/CFS, 2025, Habermann-Horstmeier et al

    They also vary too much over time. I can't even remember another study that bothered to track this, it's always single points in time. The only study that did this was the second Body Politic one, and it showed how those symptom profiles shift and wane massively over the course of the illness...
  11. rvallee

    Trial Report Plasma cell targeting with the anti-CD38 antibody daratumumab in ME/CFS -a clinical pilot study, 2025, Fluge et al

    I genuinely trust politicians to do the smart thing here more than I trust the medical advisers who would tell them what is the smart thing to do to put it accurately. As long as the smart thing is in the form of "this will save X billions per year", which is a pitch they already got and bought...
  12. rvallee

    [...] online patient education program for children and young people with ME/CFS and their parents within the BAYNET FOR MECFS Study, 2025, Keicher+

    There is, but it all comes with the baggage of how programs like this are basically considered "good enough, no need to do more" from decades of being used to justify doing nothing. This context can't be ignored, a program like this can't make up for everything else being broken, and it...
  13. rvallee

    [...] online patient education program for children and young people with ME/CFS and their parents within the BAYNET FOR MECFS Study, 2025, Keicher+

    It's not the patients who need education, it's the professionals. The idea of teaching things they don't understand to people who understand it better is completely ridiculous. Most of the rest has nothing to do with education, it's inflexible systems that punish sick people for being sick in a...
  14. rvallee

    Long COVID: a long road ahead, 2025, Blitshteyn

    This completely misunderstands what sick people place our hopes into. False hope has essentially destroyed the person I used to be, it has caused major trust issues with, frankly, literally all of humanity. However long I live I will always have a default position of distrust for anyone holding...
  15. rvallee

    Healthcare use and costs of functional somatic disorder in Denmark: a population-based cohort study (DanFunD) 2025 Petersen, Fink et al

    No one has that kind of power and influence on their own. This is power given, not taken. People choose to throw the patients down his trash chute. They want this, they don't care that none of this works any more than he does, and are just as guilty as he is of spreading propaganda. In most...
  16. rvallee

    Thesis Understanding Poorly Understood Chronic Illness: Lived Experiences, Healthcare Journeys, and Recommendations for Change, 2025, Woodville

    Oh yeah well I mean it in the sense of "words have meaning", not the propaganda that co-opts common terms to strip them of that meaning. Do we need health care? Yes. Involving several types of professionals/disciplines? Yup. It's OK, though, nothing bad has ever come out of distorting the...
  17. rvallee

    ‘There’s nothing wrong with you’: The making of disability through encounters in accessible parking spaces, 2025,Kubenz

    This is such an odd counterpart to wealth privilege, which is all about gaining access to exclusive things that the general public doesn't have access to. All it takes is to be born in the right family, or some random chance event, and no one will bat an eye, but extending accommodations, which...
  18. rvallee

    Thesis Understanding Poorly Understood Chronic Illness: Lived Experiences, Healthcare Journeys, and Recommendations for Change, 2025, Woodville

    We all agree that we need "multidisciplinary care", we just don't agree on anything else, including the disciplines involved and what they would do. Which is literally everything. Might as well pretend that we agree that food is needed while one side wants the food to be edible and on a human...
Back
Top