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  1. Yann04

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    The goal was changed to 100k. Meanwhile we are at nearly 40k and there’s still a long time to go!
  2. Yann04

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Already nearly upto 30’000 this is crazy!
  3. Yann04

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Not sure what the best thread for this is but Wes Streeting was nominated as UK Health Secretary. Do we know how he stands on ME and Long Covid? From what I read he seems to be on the centrist side of labour, the Guardian said he “had a reputation for ruthlessness” whatever that means.
  4. Yann04

    Very Wealthy people’s charities — News, Advocacy Ideas etc.

    Give their interests, and that the article mentions they are the ones who will unanimously decide what the money goes into, I’m guessing not much will be spent on health unfortunately. I’d wager it’ll mostly go into border security and rural infrastructure or something.
  5. Yann04

    Preprint Relationship between acute SARS-CoV-2 viral clearance with Long COVID Symptoms: a cohort study, 2024, Herbert et al

    I can’t comment on the robustness of the study but this seems particularly relevant. I would love to see a longer term study seeing if it has an association with fitting the ME criteria at a 1 or 2 year mark.
  6. Yann04

    Cardiopulmonary and metabolic responses during a 2-day CPET in [ME/CFS]: translating reduced oxygen consumption [...], Keller et al, 2024

    @forestglip tested with sedentary controls. Could add to your me-pedia page.
  7. Yann04

    News from the USA, United States of America

    Maybe try the post office?
  8. Yann04

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    To be fair a post was made just the other week about some dodgy German exercise physiologists way to “exercise through” ME and Long Covid. So perhaps I should never have trusted the blog. It seems that it takes every abstract/thing a researcher says as truth with little scrutiny (except the...
  9. Yann04

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I knew it wasn’t perfect by far but I had somewhat of a standard for healthrising’s pieces. I’m extremely disappointed to see this. Since Cort seems to have subscribed to the Wallitt ideology, I fear much more dangerous stuff will follow...
  10. Yann04

    Well-known, famous people with Covid-19 and Long Covid

    Yeah honestly I don’t think we can blame people for half-believing BPS stuff at first. It’s really hard not to get bombarded with it when you first learn about the illnrss sadly. Thoigh to be fair she is a doctor so we should have higher (or maybe actually lower?) expectations.
  11. Yann04

    Alzheimer’s scientists and falsified data

    Alzheimer’s scientist indicted for allegedly falsifying data in $16M scheme A federal grand jury has indicted an embattled Alzheimer's researcher for allegedly falsifying data to fraudulently obtain $16 million in federal research funding from the National Institutes of Health for the...
  12. Yann04

    Tool to see daily view counts on popular pages of MEpedia

    Maybe because that dodgy nz paper by little et al focused a lot on outbreaks.
  13. Yann04

    Long Covid-19 and an effective lightning process intervention: A case study, 2024, Arroll et al.

    Completely. Same this is way more obvious, but when my health improved, I thought “wow, now that I don’t track my symptoms anymore I feel so much better”. The reason I lost motivation to track my symptoms, was… because they weren’t bothing me as much anymore.
  14. Yann04

    Very Wealthy people’s charities — News, Advocacy Ideas etc.

    News: Warren Buffet has created a 100 billion USD charity. It is unclear what the money will be spent on. https://www.axios.com/2024/07/01/warren-buffett-pledge-100-billion
  15. Yann04

    Very Wealthy people’s charities — News, Advocacy Ideas etc.

    In our world, a lot of the money going into medical research comes from private charities run by extremely wealthy people. Since news related to these charities usually don’t warrant their own thread, I’m creating this catch-all one. There has been a little talk in the ME/LC community in...
  16. Yann04

    News from Japan

    As a random note, while this is disgustingly horrible. Some members said it would not happen in the west. It definitely does. This is the comment section of a post by Diana (Physics Girl) on long COVID. These are the top comments, not scrolling down or anything. [TRIGGER WARNING: Extremely...
  17. Yann04

    Well-known, famous people with Covid-19 and Long Covid

    The description seems to have changed for much the better
  18. Yann04

    Well-known, famous people with Covid-19 and Long Covid

    awesome initiative but comon “chronic fatigue”….
  19. Yann04

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    Have there been any geniune clinical trials of this test?
  20. Yann04

    Will psychology ever 'join hands' with disability studies? Opportunities and challenges in working towards structurally competent... 2024 Hunt

    She also wrote the paper saying patients were right vis à vis PACE and that discontent was fully justified.
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