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The goal was changed to 100k. Meanwhile we are at nearly 40k and there’s still a long time to go!

Already nearly upto 30’000 this is crazy!

Not sure what the best thread for this is but Wes Streeting was nominated as UK Health Secretary. Do we know how he stands on ME and Long Covid? From what I read he seems to be on the centrist side of labour, the Guardian said he “had a reputation for ruthlessness” whatever that means.

Give their interests, and that the article mentions they are the ones who will unanimously decide what the money goes into, I’m guessing not much will be spent on health unfortunately. I’d wager it’ll mostly go into border security and rural infrastructure or something.

I can’t comment on the robustness of the study but this seems particularly relevant. I would love to see a longer term study seeing if it has an association with fitting the ME criteria at a 1 or 2 year mark.

@forestglip tested with sedentary controls. Could add to your me-pedia page.

Maybe try the post office?

To be fair a post was made just the other week about some dodgy German exercise physiologists way to “exercise through” ME and Long Covid. So perhaps I should never have trusted the blog. It seems that it takes every abstract/thing a researcher says as truth with little scrutiny (except the...

I knew it wasn’t perfect by far but I had somewhat of a standard for healthrising’s pieces. I’m extremely disappointed to see this. Since Cort seems to have subscribed to the Wallitt ideology, I fear much more dangerous stuff will follow...

Yeah honestly I don’t think we can blame people for half-believing BPS stuff at first. It’s really hard not to get bombarded with it when you first learn about the illnrss sadly. Thoigh to be fair she is a doctor so we should have higher (or maybe actually lower?) expectations.

Alzheimer’s scientist indicted for allegedly falsifying data in $16M scheme A federal grand jury has indicted an embattled Alzheimer's researcher for allegedly falsifying data to fraudulently obtain $16 million in federal research funding from the National Institutes of Health for the...

Maybe because that dodgy nz paper by little et al focused a lot on outbreaks.

Completely. Same this is way more obvious, but when my health improved, I thought “wow, now that I don’t track my symptoms anymore I feel so much better”. The reason I lost motivation to track my symptoms, was… because they weren’t bothing me as much anymore.

News: Warren Buffet has created a 100 billion USD charity. It is unclear what the money will be spent on. https://www.axios.com/2024/07/01/warren-buffett-pledge-100-billion

In our world, a lot of the money going into medical research comes from private charities run by extremely wealthy people. Since news related to these charities usually don’t warrant their own thread, I’m creating this catch-all one. There has been a little talk in the ME/LC community in...

As a random note, while this is disgustingly horrible. Some members said it would not happen in the west. It definitely does. This is the comment section of a post by Diana (Physics Girl) on long COVID. These are the top comments, not scrolling down or anything. [TRIGGER WARNING: Extremely...

The description seems to have changed for much the better

awesome initiative but comon “chronic fatigue”….

Have there been any geniune clinical trials of this test?

She also wrote the paper saying patients were right vis à vis PACE and that discontent was fully justified.