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  1. forestglip

    Evidence Circulating Microclots and Activated Platelets Contribute to Hyperinflammation Within Pediatric Post Acute Sequala of COVID, 2024, Okuducu+

    Aren't "long COVID" and "PASC" interchangeable? They keep alternating between the terms and also the last sentence makes it seem like two different things. From Mayo Clinic Proceedings: I think they're trying to say long COVID including obvious MIS-C is similar to long-COVID without it. My...
  2. forestglip

    Evaluating myelophil, a 30% ethanol extract of Astragalus membranaceous and Salvia miltiorrhiza for alleviating fatigue in long COVID 2024 Joung et al

    Evaluating myelophil, a 30% ethanol extract of Astragalus membranaceus and Salvia miltiorrhiza, for alleviating fatigue in long COVID: a real-world observational study 20 June 2024 Jin-Yong Joung, Jin-Seok Lee, Yujin Choi, Yoon Jung Kim, Hyeon-Muk Oh, Hyun-Sik Seo, Chang-Gue Son Background...
  3. forestglip

    Modern environmental factors

    I hope I don't come across as presenting anything in this thread as fact. My goal is to make people even aware it's a possibility so that maybe actual research can happen which actually can determine if it's a fact. As it stands, research or even discussion about environment causing ME seems to...
  4. forestglip

    Modern environmental factors

    The Guardian: "Top Canadian scientist alleges in leaked emails he was barred from studying mystery brain illness", 3 June 2024 Follow up article: "Second Canadian scientist alleges brain illness investigation was shut down", 21 June 2024
  5. forestglip

    Modern environmental factors

    The potential link to humidifier disinfectants seems to be based on this survey, though I can't find it online: ---- Cort's blog is partly talking about how GWI and ME/CFS may be different because not all people with GWI have abnormal 2-day CPET: But this seems like the same thing as long...
  6. forestglip

    A 2-day cardiopulmonary exercise test in chronic fatigue syndrome patients who were exposed to humidifier disinfectants, 2023, Leem et al

    None of the sources about HDs in the intro where they discuss a potential link even mention CFS or PEM. (Edit: Seems to be based on a survey mentioned in reference 25.) They didn’t recruit based on if the CFS symptoms came after HD exposure, as far as I can tell: They make it clear they are...
  7. forestglip

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    If anyone lives in the US wants to contact congress people, this site will tell you all your representatives.
  8. forestglip

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Final blog post in the "Lies, Damn Lies, and Statistics" series by Jeannette Burmeister: The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 4) Ends with a call to action:
  9. forestglip

    Modern environmental factors

    Widespread impacts to precipitation of the East Palestine Ohio train accident 19 June 2024 David A Gay, Katelan Blaydes, James J Schauer, Martin Shafer "From these two maps, it is very clear that extreme concentrations of multiple pollutants were present over a widespread area during the days...
  10. forestglip

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    They posted this: (I accidentally deleted the question they are responding to. Basically asking if they split their original study by individuals or simply by cells.) As I say in response, I think I might have misinterpreted what they meant by "samples" in the paper when they said "the train...
  11. forestglip

    Plasma proteomics identify biomarkers predicting Parkinson’s disease up to 7 years before symptom onset, 2024, Hällqvist et al

    Not 100% sure what's going on in this study, but here's the introduction with an overview:
  12. forestglip

    Plasma proteomics identify biomarkers predicting Parkinson’s disease up to 7 years before symptom onset, 2024, Hällqvist et al

    Plasma proteomics identify biomarkers predicting Parkinson’s disease up to 7 years before symptom onset Jenny Hällqvist, Michael Bartl, Mohammed Dakna, Sebastian Schade, Paolo Garagnani, Maria-Giulia Bacalini, Chiara Pirazzini, Kailash Bhatia, Sebastian Schreglmann, Mary Xylaki, Sandrina Weber...
  13. forestglip

    Objectively testable physiological symptoms?

    Many symptoms in long COVID and other post infection conditions, like fatigue, pain, and brain fog, are hard to test for and it's easy for someone on the outside to say those are caused by maladaptive thought processes even if someone is experiencing them. What are some other well documented or...
  14. forestglip

    Review Beyond the serotonin deficit hypothesis: communicating a neuroplasticity framework of major depressive disorder, 2024, Page et al

    Beyond the serotonin deficit hypothesis: communicating a neuroplasticity framework of major depressive disorder Chloe E. Page, C. Neill Epperson, Andrew M. Novick, Korrina A. Duffy, Scott M. Thompson Abstract The serotonin deficit hypothesis explanation for major depressive disorder (MDD) has...
  15. forestglip

    News from Australia

    ABC: 'Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know' "It's a similar story for Kate Pern, an ambulatory wheelchair user who lives with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating multi-system illness that gets...
  16. forestglip

    Covid-19 vaccines and vaccinations

    Retraction Watch: 'Expression of concern coming for paper some used to link COVID-19 vaccines to deaths' BMJ Expression of concern: "The integrity team and editors are investigating issues raised regarding the quality and messaging of this work. The Princess Máxima Centre, which is listed as...
  17. forestglip

    Protocol Effects of Pycnogenol® in people with post-COVID-19 condition (PYCNOVID): study protocol for a single-center, placebo controlled, quadruple-blind, RCT

    I think "Pycnogenol" is a single specific formulation of pine bark extract, with the name trademarked by a company.
  18. forestglip

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    I wish I could watch a video of these presentations. Feels a bit surreal to see PEM as the presentation topic for all the students.
  19. forestglip

    Salivary biomarkers as pioneering indicators for diagnosis and severity stratification of pediatric long COVID, 2024, Tyrkalska et al.

    Salivary biomarkers as pioneering indicators for diagnosis and severity stratification of pediatric long COVID Sylwia D Tyrkalska, Fernando Pérez-Sanz, Lorena Franco-Martínez, Camila P Rubio, Asta Tvarijonaviciute, Silvia Martínez-Subiela, María Méndez-Hernández, Alba González-Aumatell, Clara...
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