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I’d prefer Tripe :D

Bearing in mind this started well before the old NICE guidelines were even considered for review the thinking is old hat just glossed over to give the appearance of being relevant 9 years later and NICE ‘21 compliant. Like giving your old car a respray.

Clear comms :thumbup: You can only work within the capacity that’s available to you.

@PhysiosforME posted on Facebook they are looking for help translating their handout on how to work with PWME Already have French, Swedish, Dutch, Spanish. But if you’re able to help with any other languages let them know

Concerning

I had to get a postal vote long before I got diagnosed with ME because I used to have to travel away from home long days or overnight for meetings and missed out on local elections one year. I have stuck with it since I stopped working as it was only then a question of getting to a post box at...

Sorry probably should have realised :confused:

Hi @yannik what is sp02

What does the body battery function involve @Amw66?

Why do they always say CBT when they should be saying counselling

There are definitely some issues with the daily balance scores and messages in my experience but I ignore those and just see it as a quick and dirty record of symptoms. I think monthly funcaps are likely to be more useful than the rest of it as it currently stands.

Sorry to hear that V.R.T. Sending hugs

@Keela Too how did you add steps? Just noting manually your number from another App? Or something tech?

In a positive development the free version of the app has added a shorter version of the Norwegian developed Funcap questionnaire as a monthly review of functional capacity.

I note the Metro article says alcohol and SSRIs should be avoided when taking pregabalin. I was on fluoxetine when I was prescribed pregabalin…….

Sorry but for Person with ME the decision how much energy to spend on any given activity isn’t a simple effort v reward calculation described by Korosshetz if I do this I will get 2 dollars, it is reward gained less harm/cost incurred for any given use of energy. Harm/cost being a range of...

As @Andy replied on that thread

Surely they will be superceded by an App anyway especially for younger patient group. Obviously as with PACE manual the source of content and the ‘model’ for any app will be very important.

I think that’s likely to be a red herring.

:banghead: