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  1. NelliePledge

    UK Parliament Research Briefing: Invisible Disabilities in Education and Employment

    Catherine Hale, Astriid listed as involved in POST board Also lists Fran Springfield from Chronic Illness Inclusion as a reviewer/contributor to the report
  2. NelliePledge

    Medical conditions that are well recognized but that (currently) lack a diagnostic biomarker?

    https://www.nhs.uk/conditions/multiple-sclerosis/diagnosis/ Multiple Sclerosis as an example where even when there are tests there’s no single test that’s guaranteed to show it.
  3. NelliePledge

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    I wonder if therapies in the plural means the CBT sausage machine is falling out of favour and more patient centred approaches will be available.
  4. NelliePledge

    SF-36 - a discussion

    In my view although this is long if you do the whole thing it is better notably it actually asks about how many days in the last 30 days did your illness prevent/affect you doing basic activities.
  5. NelliePledge

    How does pain influence the outcome of CBT in patients with CFS/ME?, Kvam, 2021 (Master thesis)

    In circumstances when you have little choice about undergoing CBT there’s definitely one positive about the concept of short CBT. On IAPT I was given the opportunity of finishing after 6 sessions rather than 8 - which wasn’t something I hesitated over :whistle:
  6. NelliePledge

    Design and validation of a predictive model for determining the risk of developing fibromyalgia 2023 Benachi Sandoval et al

    History of chronic widespread pain prior to diagnosis in people who then get diagnosed with fibromyalgia well knock me down with a feather :whistle:
  7. NelliePledge

    Closed UK: DecodeME updates, was recruitment thread.

    Just did my kit last week. Posted Tuesday afternoon and I got the receipt email Saturday.
  8. NelliePledge

    "We provided mental health support to about 4,000 people — using GPT-3. Here’s what happened"

    More machine-ifying of the sausage machine In my experience of low intensity CBT with IAPT the young woman was already pretty much robotically sticking to a script for our 30 min sessions. It would be more honest to have it delivered by AI.
  9. NelliePledge

    United Kingdom: National Health Service (NHS) news

    Maybe it’s better his involvement is out in the open, as being a behind the scenes influence is completely unaccountable
  10. NelliePledge

    Stanford PACS and ME/CFS Clinic--and a big thank you to Sci for ME members

    hi @SunnyK im not familiar with these acronyms
  11. NelliePledge

    Trisha Greenhalgh on ME/CFS and Long Covid

    I assumed it was about the circles and the recycling of old psychosomatic ideas to the consequences of the latest virus
  12. NelliePledge

    Trisha Greenhalgh on ME/CFS and Long Covid

    It will be interesting to see whether she actually tackles this when she realises how entrenched in their views they are or if she does a 180 a la Garner
  13. NelliePledge

    What can PwME hope for in 2023?

    I would hope for less hyping of early and not significant findings.
  14. NelliePledge

    What can PwME hope for in 2023?

    The researchers seem to have a very elongated definition of soon
  15. NelliePledge

    Fold-up chair for kitchen

    The IKEA Franklin one I bought is £35 comes in two heights as well so I could get one high enough for the kitchen work surface.
  16. NelliePledge

    Fold-up chair for kitchen

    Yes I’ve got a folding bar stool with a back from ikea. I needed a sturdy one so it isn’t lightweight but ok for me to move to where I need it. I’ve put felt gliders on the feet and I’ve got vinyl flooring so it slides ok.
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