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I can see why they wouldn't want people with military grade twaddle-spotting apparatus, though, who are also likely to ask highly inconvenient questions.

Biology being what it is, I'm less sure about that one—but yes, it's a great idea to think it through.

It may not be directly relevant, as substantial numbers of people with ME don't really unload their muscles. They might be able to do less, but unless they're severely ill they often have to carry on as best they can. Their activity pattern doesn't resemble bed rest, space flight, or immersion...

Maybe they're developing it into a competitive sport. Next paper will describe the bonus points for creativity in derisive acronyms for patients.

Done!

It was several years ago, too.

It does, and I suspect the ideas was try and take people off PIP because "support already exists". Except that it doesn't, DFGs are quite specific and don't cover ongoing costs. Same goes for the small aids that people get via their local authority. I think it may depend on the council's...

I'd choke on that! Not exaggerating, either. :ill: Come to think of it, a south Asian friend often makes that—I don't have the recipe and hadn't thought about quantities of cumin. I'm only ever wiped out for a couple of days after eating it, because she lives almost two hours' drive away and...

Those quotes you posted are so ridiculous I actually laughed. This kind of nonsense is the preserve of the desperate-for-attention, and I'm not going to reward him with mine.

Another Guardian article about the proposed changes, this time from a psychologist: https://www.theguardian.com/commentisfree/2024/may/01/rishi-sunak-welfare-support-depression-anxiety

I'm quite curious about how you swallow a teaspoon of cumin!

I'm not sure it is, TBH. Quite a lot of it seems to be more about them imagining that people housebound with anxiety and depression are a bit fed up, and that putting in a couple of grab handles and a raised loo seat will cover all the additional costs of people with mobility problems. Basing...

Might help to have a look at Frances Ryan's Guardian column for today: https://www.theguardian.com/commentisfree/2024/apr/30/ministers-disabled-people-vouchers-government-groupon

Exactly. But in some cases a (properly trained) therapist might have a place shortly after diagnosis, helping to guide people through getting a sense of their activity capacity and reassuring them that slowing down is not only okay but strongly recommended. It's always hard, but especially so...

I guess if the CAR T-cell therapies work out for a big enough proportion of the patients where it's still used, it might disappear altogether?

The irony is that if they didn't have this completely arse-about-face, it might actually be useful for some pwME. I've had ulnar nerve impingement, probably from learning a batch of reel sets on the whistle. It involves repeating the same arpeggiated phrases over and over to get them up to high...

:rofl:

There's a chance it'd be a pointless exercise this time, as there may be a change of government in the not-too-distant. There's likely to be some focus on this even if the current opposition gets voted in, but all bets are off on what it will look like and when it will happen. As for the...

Maybe we should consider an annual S4ME award...

Maybe that was the reason for using it! Bloody marvellous for getting the chlorine smell out of long hair, though.