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  1. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    It sounds slightly sinister to me, in the sense of making sickness benefits contingent on having sought treatment. I don't know if that's the right interpretation, but if it is, it works two ways. It would have been an enormous risk to ME patients pre-Nice guidelines, but it could theoretically...
  2. Kitty

    Critical Appraisal Tools

    From @MSEsperanza: Yes. At least according to the Cochrane Handbook, as pointed out in one of the published responses to the Anomalies paper: "NICE did downgrade quality of evidence when subjective outcomes (not just fatigue, but also pain, sleep, quality of life, etc.) were used in trials...
  3. Kitty

    Petition to UK govt: 'Protect the NHS and All Healthcare: Require #MasksInHealthcare'

    Our surgery does, and they're available at the rheumatology clinic too. When I went for my Covid jab the pharmacist asked if I'd like him to wear one, and as there was a box on the table, I guess I could have asked for one if I wanted. So in some places they're available, but whether that'd be...
  4. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    It's an interesting point, but central government knows perfectly well that local government hasn't the capacity to offer social care to all the people who need it even now. Whitehall has failed to put in place policy to make care work an attractive career choice, and councils have lost so much...
  5. Kitty

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    The bizarre thing is that they never mention what actually needs changing, which is the way employers discriminate against disabled people. I've worked with quite a number who had significant impairments but weren't ill. They all wanted opportunities to build better careers, but it had bugger...
  6. Kitty

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Indeed. And if it is firmly rejected, despite the fact that White et al waited to publish their article until Nice might be assumed to have its focus elsewhere because it's "done" ME, it's a useful rap on the knuckles.
  7. Kitty

    Covid-19 vaccination experiences

    I had the usual feeling of having taken a stimulant the day after my jab on Monday, plus a couple of hours of feeling alternately warm and then cold last night. Other that that, nothing—I just got a bit more done than usual because of the extra energy.
  8. Kitty

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    But anyway, back to the topic—unusually, I have got my hopes up on this one. It's unlikely to shut White et al up, but if it's done as well as I hope, it's another line in the sand.
  9. Kitty

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Hopefully the thingies will become like the northern lights in Oslo—don't pop up very often, and faint when they do. But they might look greenish-pink on a photo.
  10. Kitty

    Covid-19 vaccines and vaccinations

    Funny you should say that, because I've just come on to report something vaguely connected. Someone on my Facebook feed asked her contacts whether any of them had been jabbed with something that wasn't Moderna. She was quite poorly after the last booster in May, and her GP is using the same...
  11. Kitty

    Atypical manifestation of celiac disease in carriers of HLA mutant gene (CFS mentioned in abstract), 2023, Nekrashchuk

    Umm. I think undiagnosed celiac disease can cause chronic fatigue in some people, so this might be a case of confusing the two names in the opposite way to usual. The rest of the manifestations sound a bit ... well, made up to be honest.
  12. Kitty

    Covid-19 vaccination experiences

    Yes, I took it to mean that immunocompromised people might need boosting more frequently. The frequency might be an individual thing, on the advice of a doctor who knows your history. Maybe you or your mum could call the advice line on 119? It certainly sounds as if you'd be eligible for the...
  13. Kitty

    Covid-19 vaccination experiences

    I found the handout online. TL;DR seems to be that immunocompromised people might need more doses. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1182181/PIL_COMIRNATY_BA.4-5_bivalent_12_years+.pdf
  14. Kitty

    Covid-19 vaccination experiences

    I got a four-page handout with my jab this time, so I'll read through it and post anything that looks useful.
  15. Kitty

    2012 Letter to the Independent on harassment of researchers

    The list of signatories might be useful in this thread: https://www.s4me.info/threads/bps-organizations-and-structures.35508/#post-496551 I haven't copied it across because I don't follow the BPS stuff; I'm not sure how which of them were/are active as clinicians and which were just brown-nosing.
  16. Kitty

    Covid-19 vaccination experiences

    I had my latest booster early doors today. At least in the Midlands area, they seem to be using same one as the spring booster programme, the combined Comirnaty Original/Omicron BA4.5. I'm not sure whether this is country-wide, but thought it was worth mentioning for anyone who's still waiting...
  17. Kitty

    Help for sound sensitivity

    Welcome, @Megsyjenks. Have you got a solar PV installation on your roof by any chance? I had an annoying buzz coming from the loft when I first moved here, which really bothered me at night. Eventually I accumulated up enough leg function to get myself up there, and found that 85% of the noise...
  18. Kitty

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Good to have that review, @Wonko – sounds like they might be a worthwhile investment for me too. I'd looked at them before, as Bose sells factory reconditioned ones for quite reasonable prices, but I wondered how good they were. Sounds like the answer's brilliant!
  19. Kitty

    Perceptible changes in muscle tension (moderate ME)

    I wanted to ask about this, as it’s always seemed fundamental to what went wrong when I got ill in 1976. I think it’s an ME phenomenon, but I don’t know if everyone has it. I’ve been in a phase of reduced capacity since early July, but this morning the switch happened. Over about 30 seconds...
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