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:laugh: Might be in jest, but that's a sensible idea! It wouldn't surprise me, and trying them on the scent of PEM/non-PEM clothing might be as cost-effective as some of the other research ideas. Especially given that there are already established training protocols from other conditions, and...

Unless they're unconvinced by it, perhaps because not enough samples were processed? Or OMF themselves aren't as convinced as they were? Ron Davis has said that it's laborious with the kit they have, but even so, you'd think they'd have found a way to run one more cohort if they really thought...

I wonder if anyone's really dived into low-tech measurements for PEM, which can be compared to non-PEM states in the same individuals? Temperature fluctuations, continuous heart rate data, half hourly BP measurements, blood sugar, urine output, all the old-fashioned stuff. It's probably at least...

I'd go for a really idiotic lurcher. I'm more of a cat person, but daft lurchers with no control over their four-foot-long legs are pretty irresistible. And a lot more use to people with ME than most doctors.

It reads like a variant of patient-blaming, only with racist overtones. Even if "catastrophising" actually exists (which is not a given, despite the researchers' peculiar lack of curiosity about it), so what? The patients would still be in pain even if they stopped. I wonder if some...

I'm still getting over the news that people use LinkedIn in 2023 – I thought that had long gone the way of Britpop and Palm Pilots. This is disappointing, especially when you can't even view content without an account.

And me! :eek: I can't think of any reason anyone—especially a relatively inactive person—would need to extend their back in the way that stretcher does. It's not a natural position, and attempting things like this when you're stiff or haven't got good muscle strength is likely asking for...

I'm not sure it really needs to be a scientific routine. I just stretch whatever bits feels as if they need to be stretched at the time! These are some of the ones I do, which are based on what I used to teach beginners as the initial stages of a contemporary dance warm-up: arching my spine...

It is really odd, @Wyva, I've heard of people getting severe oedema with lupus before, but not with ME. It's frustrating that no-one will take it seriously. I know strange symptoms can occur without any explanation being found, but they can also be a sign of an underlying issue. You'd think...

Flaming Nora, BBC! Could bears poop in the woods? Whole thing's terrifying, though, specially for the millions who have no practical alternative but to eat processed foods as a significant part of their diet.

It looks really interesting, doesn't it. I wonder if the fact that numerous vaccines seem to offer some protection may mean it's partly an effect of the immune system being slightly activated, rather than a specific vaccine or infection. I wonder if anyone will follow it up in the years...

That be good ole' Michael Sharp.

I'd even be happy with a non-disease specific one! Which might be more likely in the scheme of things. There seem to be other instances of this, where X result = Y or M or B, and very occasionally F. There then has to be further refinement based on the signs and symptoms to decide which, but it...

I've always been intolerant, so I don't think ME is behind mine. The worst symptom is the muscle pain, which starts about 15 – 20 minutes after ingestion, and the nausea follows soon after. My skin flushes and burns like crazy, but I think that's just a histamine thing.

Especially when it comes to people of colour. There has been some suggestion that Black populations have a higher incidence of schizophrenia (or at least, a higher rate of diagnosis). The story of April hit me hard, because it's that of one of my close school friends. She excelled at everything...

I could show you mine, which I was asked to sign around 10 years ago to confirm that it had been issued. It contained my name, address, date of birth, and NHS number. No diagnoses, no medication details, no record of the fact that I'm a wheelchair user. All the pages except the patient ID...

Wonder if it's worth staking 100kr on the announcement of a brand new long Covid centre?

People who have it may be able to. When I developed inflammatory arthritis, it came with a new type of fatigue. My GP didn't believe I could tell the difference, but it was fairly obvious to me. The new type was a pretty constant line across a graph, whereas my ME fatigue looks like a child's...

On the other hand, if I'd filled it in at a couple of points in my illness, I'd have said 'improving' or 'recovered'. I had fluctuating ME, which like investments can go up and down over time!—but even after several years of illness, I didn't yet understand that. For people like me, it'd be a...

I've come across several people (although not ME patients) who're very afraid of dental treatment, and the consensus seemed to be that dentists are pretty good at understanding this. Many are willing to offer a dose of Valium before they start the treatment. I shared an office for years with...