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I tracked mine for a long while, first on a Fitbit and then on an Apple Watch (you're right about the latter possibly not being right for you, as you also need an iPhone), and all I've concluded is that the trend of my resting heart rate on waking goes up noticeably when I'm not well. It doesn't...

This seems to be the nub of it. If it asks whether a proportion of patients have these symptoms, and passes thorough ethical review, and recruits its subjects with full informed consent, and pursues the question using validated techniques, and reports its findings transparently, it qualifies as...

Oh, that's good to see. Last time I looked, I couldn't find the study on their website, even searching for it by name. I think they only draw from particular registries, though, and there might be a technical reason DecodeME wasn't there.

But on the bright side, anything endorsed by Dawkins is statistically more likely to be dropped like a dead rat. Probably.

It would be great to come up with a set of brief but telling activities, that could be sent out as prompts to people at random times during the day and early evening, asking (as long as it's safe and feasible where they currently are) to do X, Y or Z as soon as possible. We're all so used to...

I feel a bit useless on this, really. I'm not active on social media (I've done as much as I can, but if you never post no-one follows you), and outside of this forum all the active online and face-to-face networks I'm involved in are wildlife conservation or music ones. I think I've coped with...

Several are in use for Covid, although not commonly—I know this because I've been "identified" as someone who might benefit if they got infected (I've dodged it so far). They're also sometimes used for 'flu. I suspect most people in the UK will never be offered one, because their use is...

I think there's likely to be a lot in this. There's also arguably a good clinical reason for keeping the two separate, at least on people's medical records. Categorising/coding the two conditions for statistical and resource allocation purposes, and treating/managing them are different issues...

:rofl: :rofl:

Yes, that's what I wondered. In some respects I can understand why some GPs wouldn't take the diagnosis further than long Covid. They might think it's unlikely to help the patient or their doctors to call it by another name if there's a strong link to a Covid infection and the symptoms haven't...

Yes, that's a good thought. No idea of the answer, but it would explain something that looked very odd at the time.

I didn't realise there were so few questionnaires from people diagnosed after Covid. I wonder whether they're getting diagnosed with long Covid rather than ME, regardless of their symptom profile? The number of online support groups would suggest that at least some of these folk are proactive...