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  1. Jonathan Edwards

    How can I wake up to long-playing birdsong or similar without a smartphone?

    There are electronic alarm clocks for sale by e.g. Sony that an iPod can be fixed to and presumably produce any recording including birdsong. They look to be about £50 new but eBay has things for under £10. I have never used an iPod myself so don't know the details. You really need a...
  2. Jonathan Edwards

    BBC article: Are Iranian schoolgirls being poisoned by toxic gas?, 2023 (quotes Wessely)

    Girls are supposed to be the target of this, not boys. And if this is not poisoning what if it is an intelligent strategy on the part of these girls to draw world attention to their plight? It has always seemed to me that many psychiatrists treat other human beings as playthings. A few are...
  3. Jonathan Edwards

    USA: Cleveland Clinic

    The recommendations you list have no basis in evidence, as you say. Being a prestigious hospital is unfortunately no guarantee physicians will provide useful advice. The policy here is to avoid giving advice on medical treatment so I think that is all I can say.
  4. Jonathan Edwards

    News from Scandinavia

    Ironic that the heroine is called Signe then.
  5. Jonathan Edwards

    News from Scandinavia

    It sounds sadistic. But then modern life seems to be full of such stuff. Maybe I should take a look.
  6. Jonathan Edwards

    Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients (Thapaliya et al, 2023)

    They show about a 10-20% higher value in pons and brainstem for ME than controls. That is about as much as one could credibly expect I think, so not trivial. It would make a lot of sense if brainstem was abnormal in ME and one would probably expect it to be bigger rather than smaller. I doubt...
  7. Jonathan Edwards

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    We can believe the patients without believing the explanations. And of course the whole story was very convenient for the then US administration - appearing at just the desired time.
  8. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    Various things associated with Dr Q Aziz ring the wrong bells for me - several of them, including his departure to the private sector. I know Willie and Nigel well, and their views. The task is to discover what other views are and why there is such antagonism. I have not so far heard back from...
  9. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    Is he someone who might be interested in listening to ME interests?
  10. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    My thinking would be to keep the focus on those cases where nutrition becomes a severe enough problem to be life-threatening or at least leading to significant malnutrition. Otherwise the special problem of severe ME gets muddled up with 101 reasons for feeding problems that may or may not be...
  11. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    Partly to include fluids and electrolytes. Also food and dietary intolerances tend to mean specific allergies or coeliac etc. which I don't think are the central issue. My understanding is that the people who at real risk cannot manage anything.
  12. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    Yes, that was the reason for making it nutritional intake intolerance - emphasising that this is in the end of just getting nutrition in, not adverse symptoms for specific foods. I think all specific motility mechanisms should be kept out of this at least until someone shows that they are real...
  13. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    Cystic fibrosis may be an interesting comparison in that this is not the situation for ME, despite some 'experts' trying very hard to give that impression. There are no structural changes that would explain weight loss known to be part of ME. In a way, this is what Peter White should have meant...
  14. Jonathan Edwards

    Lab Leak Most Likely Origin of Covid-19 Pandemic, Energy Department Now Says

    I can't follow all the detail of the molecular biology but there seem to be some disingenuous sections in this. They say that although viruses have escaped from labs before (actually tons including the lady who died of smallpox, and SARS-1) this would be the first leak of a new virus. Which does...
  15. Jonathan Edwards

    Pathogens associated with triggering ME/CFS - discussion thread

    As far as I am aware pretty much all infections associated with ME/CFS are intracellular. That applies to all viruses but only a small number of bacteria and 'intermediate' organisms like rickettsia (name has probably changed). The obvious hint is that the relevant immune response is mediated...
  16. Jonathan Edwards

    Lab Leak Most Likely Origin of Covid-19 Pandemic, Energy Department Now Says

    I have two caveats to that. Firstly this sounds like a denial that Covid19 was the result of some deliberate genetic engineering. That might indeed be unlikely but it isn't the point. The point is whether sloppy technique at the lab allowed a virus to escape. We have pretty good evidence, as I...
  17. Jonathan Edwards

    Lab Leak Most Likely Origin of Covid-19 Pandemic, Energy Department Now Says

    They probably put the low confidence in to cover themselves but this seems to me the only sensible explanation.
  18. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    it is understandable. My point is that it is a red rag to the bull in charge of the poor patient and a distraction. We want research into problems, all of which are physical, including those to do with the mind. But encouraging patients to think that they should have unreliable tests and...
  19. Jonathan Edwards

    Severe difficulties with eating in ME/CFS

    I think once you get to options like tube feeding, which are what are being denied, the decision on placing a tube has to involve a physician. I may be wrong but I think there is a need to tackle the gastro side.
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