Search results

  1. Jonathan Edwards

    BPS attempts at psychologizing Long Covid

    The depressing thing is the continued emphasis on rehabilitation being a good thing and 'expanding'. Even in the early article they know-tow to Lynne Turner-Stokes, who at that stage had no evidence to offer and spouted the mantra about individualisation that allows the rehab team carte blanche...
  2. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    I find it very difficult to engage with documents of this sort, written by people who do not understand the material they are supposed to be expert in. If I had to respond I would probably have to say: Several statements in the response to comments indicate a fundamental lack of understanding...
  3. Jonathan Edwards

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    I seem to remember one paper that seemed to show that therapists at King's were nothing like as good as those in Holland, but I may be misremembering!
  4. Jonathan Edwards

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    It got buried in the pages. A UK crossbench peer offering her home to a fleeing Ukrainian family has said the UK’s visa scheme is “unwelcoming” and adding to refugees’ trauma. Lady Finlay is offering space in her Cardiff home to a mother and two children, but has been waiting for three weeks...
  5. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    But that is not what the German text says. Moreover, my discussions with old colleagues about this when I presented the 'Horrors of PACE' some years back, and also chit-chat over the years, makes it clear to me that cynicism and hypocrisy spill over any half-coherent theorising. The shift of the...
  6. Jonathan Edwards

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    One comes to understand how lucky PWME were to have Ilora Finlay involved: See the account of her attempt to provide shelter for a Ukrainian family...
  7. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    Sorry @MSEsperanza, but I am now confused as to who is making these comments in response to what? I have lost the plot.
  8. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    Good questions. And, as an addendum to my post #187, which might seem not quite to fit with what the BPS view is supposed to be, a further thought. I didn't go in to psychiatry, not because the patients did not desperately need help, but because I got the impression that the health...
  9. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    But surely this is not what the claim refers to. If tinnitus is less intrusive it is less intrusive. There is no need to learn to rate it as such. It just is. Tinnitus is an error of acoustic nerve feedback. Distraction, and the best form is hearing aids, abolishes the tinnitus, it doesn't just...
  10. Jonathan Edwards

    News from Germany

    I wondered who still used a typewriter.
  11. Jonathan Edwards

    Neuropathology and virus in brain of SARS-CoV-2 infected non-human primates, 2022, Rutkai et al

    And of course passing the same virus through another non-human host is an ideal way to create new variants that might be 100 times more lethal. ... Long time passing. When will they ever learn, When will they ever learn?
  12. Jonathan Edwards

    American College of Rheumatology. Preliminary definition of improvement in rheumatoid arthritis, 1995, Felson et al.

    I am not sure that there is much literature on this. it is just common sense, and the committees that right about scoring systems tend not to get involved in common sense. I don't think it is widely accepted that it is OK to use lower standards - the double-think ensures that those involved...
  13. Jonathan Edwards

    Neuropathology and virus in brain of SARS-CoV-2 infected non-human primates, 2022, Rutkai et al

    Perhaps further evidence to support the hypothesis that playing with viruses in labs with poor safety standards is not such a good idea.
  14. Jonathan Edwards

    Bias due to a lack of blinding: a discussion

    This statement is preposterous. How does learning to rate your symptoms as less provide any genuine relief? Basically they are saying that if you can brainwash patients to say what you want them to say that is all that matters. This isn't even based on the idea that if the patient believes they...
  15. Jonathan Edwards

    Nutrition and Rheumatoid Arthritis Onset: A Prospective Analysis Using the UK Biobank,2022, Camillia Barbero Mazzucca et al

    The most likely explanation to me is that there still aren't that many rheumatologists in rural Scotland and Wales so fewer people get diagnosed. A high proportion of RA is quite mild and very easily missed by GPs following dumb protocols.
  16. Jonathan Edwards

    American College of Rheumatology. Preliminary definition of improvement in rheumatoid arthritis, 1995, Felson et al.

    I don't know the literature but this has been looked at at length. Results with the two systems tend to be similar but not always. The problem is that if even if the two systems correlate 85% the 15% discrepancy might be exactly what makes a difference statistically significant in a study. Most...
  17. Jonathan Edwards

    American College of Rheumatology. Preliminary definition of improvement in rheumatoid arthritis, 1995, Felson et al.

    Just to add that yes, the ACR grading is still the gold standard 25 years later. This probably reflects the fact that it was put together by a small group of people who, knowingly or unknowingly, had a feel for how real decisions are made. There is another system that exists alongside it though...
Back
Top