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Physicians and researcher worldwide have agreed to use ME/CFS, I think for the following reasons: 1. Neither term is very good and patients prefer ME. 2. ME is not used on its own to avoid two misinterpretations. 3. We want to avoid people thinking we mean ME in Wessely's sense that 'ME is just...

Yep, he who laughs last laughs longest - looks like @Barry in this case.

Of course I meant Moss-Morris. But you know that. I was thinking of her video on Body Psychotherapy. I wonder if they are worried that knowing 'what to say' and 'what not to say' we can now make them all redundant and have a robot that says: "Really? Oh how awful!' 'You poor soul' "You should...

If anyone at my old institution is reading, I am disappointed. This meeting is organised by UCL, or at least the Institute of Child Health Part and the department of psychiatry part of that. (Prof Heyman, whom I have never heard of). This is the 2nd London International One Day Conference on...

If you've tried putting a home made Covid mask on round your glasses, baseball cap and hearing aids you will know why those ones were omitted!

It seems to me a remarkably bigoted and stupid analysis to be honest. He just wants to pretend there isn't a problem. Ask my niece who works in A?E if there is a problem. The problem is that there was no initial closure of air traffic that would have aborted the entire European epidemic. As it...

I read this as: We took a load of patients who we thought were a bit nutty and lazy who kept us in work by coming along to our rehab programme. We tested them on all sorts of things to do with being nuts and lazy. We found that worse people were worse. But, annoyingly, not much worse, so we...

To be honest @Diane O'Leary, I cannot see the point in this sort of discussion. It irritates clinicians and researchers of all types. They just want to get on with looking after people or doing research and they know which people they are dealing with. The history is I think unhelpful. Wessely...

The problem as I see it is that there is really very little quality control in neurosurgery in general. I was offered a massive 2 hr operation to deal with my chronic lumbo-sacral radiculopathy (originally. from a disc) despite the MRI showing no root compression. When I sat down and thought...

I would pick out James Baraniuk as someone with deep understanding of both clinical and science issues. I think his chief interest is Gulf War Syndrome.

Sinus arrhythmia means that the heart conducting systems are linking together normally but beats are not coming exactly as regularly as clockwork. The usual reason for this is relatively deep breathing - respiratory sinus arrhythmia, which might be described as 'recurrent' since the heart beat...

My understanding is that 1. There is only one centre doing upright MRI in the UK for this indication. 2. This centre takes referrals from other European countries with a view to referral for surgery 3. The view amongst neuroradiologists in the UK in general is that upright MRI is not useful. 4...

That would certainly make sense for a degenerate unstable disc with protrusion.

It might be worth reminding Dr Van Elzakker that I am not a general MD but a professor of connective tissue medicine. I spent ten years re-writing synovial fluid dynamics so am familiar with the detail of fluid compartment physiology. The points Dr v E raises are not relevant. The analysis I...

I do not know Dr Rowe, other than as someone that Dr Grahame often quoted. Rowe and colleagues wrote a paper in 1999 suggesting a link between EDS and chronic fatigue which may be the basis of the whole problem. The paper is a small case series and on close inspection the evidence looks pretty...

Responding to @Jnoelle on another thread here as requested by mods. *Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al Your comment "PwME have been badly served" reads as if your statement...

There has been a subtle drift from the Chiari/EDS world to ME via Henderson's 'cervical medullary syndrome'.

And there lies the point of the story I think. It all dates back to the reason for Peter Rowe's paper in around 2000, or maybe even 1990.

We are going through a phase where we are being reminded of all sorts of people's legitimate sensitivities, and rightly so but can anyone respond to this with anything other than cringing?

I am not talking about studies, merely about clinical experience and the point is that if people had RA and symptoms of ME they would need to be seen by somebody. Sorry but this does not make sense to me. Clinical features are paramount much of the time. But the surgeons are doing a bait and...