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Pleased to hear that ...but the WHO situation report for 22 March says 82 confirmed new cases reported. Which is still amazingly good (1% of the total number of cases and less each day).

I think the answer is: we don’t know. There’s a lot of information about keto for normal men, and for various conditions, but since we don’t really know what’s going on with ME we can’t really know what’s going on with keto helping (or not). What I’m hearing is that you want to try it if it...

“Multi-syndromatic FSS and multi-organ BDS were associated with female sex, poor health, physical limitations, and comorbidity.” (Bold is mine) Um, so you’re more likely to experience/complain of multiple symptoms when you are sick, disabled or have another defined disease? Um, yeah. Circular...

Looking forward to seeing what’s involved in some of these. A little more commitment than I was looking for but will see what evolves. Personally, I’d be looking more for something like a thread where we can go and proof a document whenever we’re up to it, being one of a pool of people who can...

Yes, very good idea. Does take a bit of building up those connections again though. I’m glad to hear of it working for you :) (Edited out excess personal stuff)

Thanks, this looks like just the sort of thing I was looking for! ...it’s not the one I was using but, at least at first glance this looks like it would be easy to: drop in and out of, keep track of some progress and achievement, and might make some difference to the world and someoen’s project. :)

I was quite suspicious of this one (‘free lunch’es and all that) but it does appear to be long standing and well-supported. Thanks, I’ll take a look.

I’m always looking for purpose in my life. For me that’s a way to contribute. My ability is very fluctuating. Sometimes I can do a lot and think through complex ideas, physical work etc but others I can barely think through how to do a routine task and certainly can’t leave home, or even bed...

I would hope you’re right. What I was getting at is that if I were able to provide input to the people who publish these things I’d hope to amend one of those three education points to better reflect the article (more than assurances about uncertainty, it needs to emphasise collaborating with...

Good article. Glad it’s going to be used for educating doctors. *** The article has a shortlist of lessons to take away from this experience. Although the first part is fine: The second part misses the point: We don’t need platitudes and reassurance. We need collaboration. The following...

Topical warm/cool. Resting from whatever is making it worse. Gentle movement and change of position/posture/side (e.g. so if you’re usually lying on your back try your side or your tummy for a little while each day - it makes everything you do from there use different...

Good point: if you combine aluminium sheeting (or rescue blanket) with a (20mm) sheet of polystyrene, you’ll be as insulted as a fridge. Might be good for the floor? [ETA if you plan to walk around on it much, get a sheet of plywood to put over it so it spreads the weight]

I second the idea that making sure you are warm underneath is important when tenting. Foam pads as well as a mattress seems like a good idea though. Just be aware that closed cell foam will be far more effective than cheap foam that’s twice as thick (because you need it to be thick even when...

I don’t know. I feel better when I lie down. I have been unable to read more than a few lines for years but now I read lying down and can do a lot more of it. But I’m also just improving anyway (maybe just because, maybe because I am getting treatment for the gut part which correlates with my...

No, it’s too late by then (the delay is usually 24hrs - although it can be cumulative so ..it can be like superimposed poisson waveforms). But I can notice signs that I’m overdoing it at the time (which if I pay attention to them can reduce the PEM strength and duration (not making it worse)...

This is a much more recent experience. When pacing well. I’m proud of getting to that. But it takes a rather unsustainable level of rest. [ETA: I might not recognise it as PEM except that a) like clock-work it has the same time-delay and b) I’m now well enough to notice it (as opposed to being...

Yes! Sorry, wow does that remind me ... I’m 6yrs in now from that time. And I too had no idea. The delay thing is really hard to get your head around until you consider that.

Like a strong flu but without the respiratory aspects (so mild fevers, aches and pains, struggling to process anything ...anything you could experience with a weeklong bout of full-blown influenza), combined with a hangover (the classic portrayal with the sensitivities), and ‘stomach flu’. Sore...

I’m flabbergasted. Just... wow. I’m so sorry. This needs more words but they pile up and I can’t find the right ones.

I always find myself wondering about chicken and egg with this sort of thing. When people find objective biophysical markers that can be correlated with how curmudgeonly etc one is, I am left wondering if what they’re finding is a degree of illness or discomfort that leads a person to be less...