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  1. rvallee

    Ethnic minority patients yearn for warmth from health care professionals, research finds

    Like an ad on cardiovascular health by a tobacco company. Chalder, a serial disrespecter, talks about respect. That's rich. As in millions and millions in useless funding. People want respect. We're not getting it. You can call that however you want, "warmth" is just a ridiculous way to put...
  2. rvallee

    Long Covid in the media and social media 2023

    Yeah we are on our own funding this. And doing most of the work. And the awareness. But that's been clear for a long time. It's almost funny to speak of research funding having dried up in the UK when it's a huge stretch to pretend they even funded anything. Most of it was wasted on BPS junk pet...
  3. rvallee

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Generic practitioner would actually be a good term for anyone trained in BPS stuff. It's so generic that it means nothing and applies to everything. Doesn't care about cause, is content with any generic nonsense as a "solution". Although in marketing generic means no branding whereas here the...
  4. rvallee

    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    If you can remember having done so. Which... yeah. No. I can't tell the difference between yesterday and 5 years ago. It's all a giant nightmarish blur of suffering. I have no connection to real life anymore. I have no connection at all to the life I had before. It's all gone. All of it. Every...
  5. rvallee

    Fading Fatigue – A Self-Management App for Supporting Long-COVID Patients with Fatigue, 2023, Schmid et al

    Apps are just a delivery format, a medium. It's the substance that's the issue, the "thinking" involved. Really here, the belief system. The underlying belief is that we need coaching and encouragement, or whatever. We're no longer able to do what we used to do, so we just need a little...
  6. rvallee

    Functional Neurological Disorder (FND) - articles, social media and discussion

    He would find that very balanced, so unlikely. By balance he doesn't mean 50:50. He means 100% his thing, the conversion disorder is mutually exclusive with a scientific model. It can't compete, it conquers. But he's probably right about this program yielding nothing, all entirely because of...
  7. rvallee

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Also, this being the residency subreddit, we can tell that this bigotry is entirely taught. People don't bring such ugly ideas of their own for the most part, and yet those specific ideas seem to be universal. So that can only be taught. The intensity of their contempt strongly suggests even...
  8. rvallee

    Distinguishing functional from primary tics: a study of expert video assessments 2023 Rigas et al

    Considering there is no way to validate the answers, this is puzzling. This is all becoming so damn spiritualistic. It's like training at some accuracy skill but with eyes covered and no one validating whether you are anywhere near the target. What is even the point of such an experiment? Very...
  9. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Moved post Key House Democrat demands NIH answer for pace of long Covid research https://www.statnews.com/2023/05/11/eshoo-nih-long-covid/ A powerful Democratic lawmaker is interrogating the National Institutes of Health over its slow progress in addressing long Covid, citing a recent STAT...
  10. rvallee

    Long Covid in the media and social media 2023

    Unsure about this, especially how much resources were spent on this. I saw something about the WHO promoting it, which would be a ridiculous waste of effort. But if it's just an awareness campaign from gamers it could be sort of useful: For context, Elden Ring is one of the most popular games...
  11. rvallee

    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    No, I really don't think this meets those criteria. But there's always funding for cheap pseudoscience, it seems. Good science? Boring, expensive. Cheap pseudoscience? Exciting, magical, whimsical, and extremely expensive.
  12. rvallee

    Protocol Feasibility randomised controlled trial of online group Acceptance and Commitment Therapy for Functional Cognitive Disorder (ACT4FCD) 2023 Poole et al

    Literally so incapable of actually listening to patients that they fail to notice that it's failure of executive reasoning that is mostly reported. Memory problems, sure, but compared to being unable to reason it's a much more significant problem. But they never listen. While they shout about...
  13. rvallee

    Socioeconomic inequalities of Long COVID: a retrospective population-based cohort study in the United Kingdom 2023 Shabnam et al

    Worth joking about, but wow is that a massive embarrassment. Not only did they invent a caricature to fit their bigotry, they literally got it completely wrong because they get easily distracted by shiny objects. Just the same as what someone said recently about how the people on TikTok doing...
  14. rvallee

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    “But Mr Dent, the plans have been available in the local planning office for the last nine months.” “Oh yes, well as soon as I heard I went straight round to see them, yesterday afternoon. You hadn’t exactly gone out of your way to call attention to them, had you? I mean, like actually telling...
  15. rvallee

    Association of SARS-CoV-2 infection and persistence with long COVID, 2023, Chengliang Yang et al

    If this holds up and is the main factor, wow does it just mirror the peptic ulcers path, except it needed a major worldwide event to make it happen. That path being rejecting by far the most likely explanation. As is tradition. But it's still missing an effective treatment. Without an easy...
  16. rvallee

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    How does this go again? Oh yeah: "It's difficult to get a man to understand something when his salary depends on not understanding it".
  17. rvallee

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I couldn't find any because I can't remember or figure out how to search for it, but over the last few years I've seen several long haulers who had pre-illness daily steps count from a smart watch/actimeter and compared to the period they were ill the difference is extreme, you can see the...
  18. rvallee

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    This is an extremely disingenuous excuse. If they had had good results you can be 1000% certain that they would have hyped this as undeniable objective proof. We know this. They know this. We can pretend, but of course this is nothing but a cheap BS excuse. It shows how this entire discipline...
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