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Yes, I wonder if this is a temporary thing (the same way some people with ME/CFS report feeling better during pregnancy / after getting covid / etc) or what. I also wonder if this would work on people whose ME/CFS started with other infectious triggers after getting vaccines for those specific...

Returning to the topic of brain fog and LC a little bit: I just saw an article on one of the major Hungarian news sites, reporting on long covid after asymptomatic infection, and it used the expression: Covid fog.

It's probably similar everywhere. I'm currently in the process of being officially diagnosed, which has been going on for several months now, since my GP has referred me to different kinds of specialists to rule everything else out (not really a PwME-friendly process). But he has never even...

This. This has always been one of my worst symptoms and I've found brain fog to be such a good description from the beginning too. Interestingly, even in Hungary I saw some people with LC use the Hungarian version of the expression, which has a somewhat weird ring to it in this language, yet...

I remember someone with LC in my own group who was completely bedbound first but then improved a lot. I saw some people who said walking is way too much for them. I don't know how common this is, it may not be. But when I came down with post-viral fatigue after glandular fever, I spent a lot of...

I'm a member of a long covid support group here in Hungary and now that the covid situation is getting much worse than ever here (record high number of infections, much younger people with much worse symptoms than before with the new strains, etc), so now in the current situation I see desperate...

Abstract Cognitive fatigue, or fatigue related to mental work, is a common experience. A growing body of work using functional neuroimaging has identified several regions that appear to be related to cognitive fatigue and that potentially comprise a “fatigue network”. These include the striatum...

Bloomberg article: Long Covid Is a Debilitating Mystery. Here’s What We Know https://www.bloomberg.com/opinion/articles/2021-03-09/do-i-have-long-covid-here-s-what-we-know-about-covid-s-lasting-effects The parts about ME/CFS:

This reminds me of the "evil machine of torture" when I had a serious knee operation in my student years (before ME/CFS) and was put on a knee-bending machine several times, similar to this...

What is German PwME's opinion on the organization Fatigatio? The Mepedia article doesn't really paint them in a very good light. https://me-pedia.org/wiki/Fatigatio_e.V. (I actually have a personal reason to ask this, not just out of curiosity.) Edit: For some reason the page doesn't show up...

There's a Facebook group where people with ME/CFS share their experiences with the vaccines. It may be a bit hard to follow but I've been a member since almost the beginning and my impression is that indeed the second dose of Pfizer tends to give you a greater reaction. Here is the group if...

There's a Facebook group where people with ME/CFS share their experiences with the vaccines. It may be a bit hard to follow but I've been a member since almost the beginning and my impression is that indeed the second dose of Pfizer tends to give you a greater reaction. Here is the group if...

This was originally intended as a reply in the "Possibility of ME or PVFS after COVID-19, Long Covid" thread but then I decided to post it here instead: This is how it ends, describing Garner as the voice of millions with ME/CFS, who were previously unheard. This may have been written before...

So now they have a short description on the website of the university (by the way, this post-covid clinic seems to be this university's own idea and is not an official response from the government/healthcare system or anything). There's not much new information there, except that they also...

First outpatient care network for post-covid syndrome will be launched in Hungary on 1st March by the University of Debrecen (the second biggest city). The first wave was really small here due to the early lockdown, so that is part of the reason why everything is in delay here. It involves a...

This is what the rapid NICE guideline said about the terminology: https://www.nice.org.uk/guidance/ng188

As a matter of fact, mine may have started with a double infection too. I had a really bad viral throat infection, by bad I don't mean the severity but that it kept coming and going for a month and it was incredibly annoying. Than a while later I developed the EBV infection, and with its longer...

Good point.

Btw, this is totally anecdotal, but I thought I'd share anyway. Some people with LC in my ME/CFS group say their symptoms started 3-4-5 months after the infection. I have posted a poll about gradual vs sudden onset and the voters were a mix of original ME/CFS patients and covid long haulers. I...

I can kind of agree with this. I know that we are not allowed to talk about what is going on in other groups, so feel free to moderate me if this is too much but: my impression here in Hungary is that the only people against the association with ME/CFS are the ones who either don't have LC...