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I am a great believer in vaccines and can understand why they need to develop one to get covid-19 under control. I get the flu vaccine every year and have never had a problem but I am wary about being among the first to get this one when it is available. It is a completely new entity and we...

I had a drug stopped because of the risk of long QT syndrome. I think it is also found in AIDS. I did wonder how old the patients were and how long they had been ill. If the heart changes shape because it is struggling then the changes would become more pronounced over time. Dr Cheney found...

Still no mention of enteroviruses! The Royal Free and the other epidemics which are the closest examples to long covid are still being ignored. No one is willing to admit it was not mass hysteria.

I would have more confidence in the concept of MUS or FNDs if I was sure they were actually looking at all possible biological causes before deciding there were none. Surely it needs more investigating before you can say there is nothing biological going on rather than doing less after a quick...

If doctors read these things at all the constant repetition will make this story sound true. We notice all the "mays" and "mights" but they are easy to miss. They are also an admission that there is no evidence for their theory. Obviously because they never test it just twist everything to make...

The usual confusion of initials :) Since the beginning the BPSers have made a land grab for any disease which wasn't well guarded by other doctors. Once they got a foothold they used their eminence to make their theories sound well researched and scientific so now, after so many years they are...

This described it beautifully. Everything sounds plausible when they say it but when the basic building block is wrong everything falls down. They say that some signs found in a standard neurological examination shows the patient has FND and say this means FND is a robust diagnosis and not a...

There was a documentary on BBC Scotland a few weeks ago, though it may still be on iplayer, called "Eminent Monsters". It was about Ewen McGregor who was the most eminent psychiatrist in Canada and head of the world associaiton of psychologists who was funded by the CIAs MKUltra program and...

I am not sure if this is an answer to you, but if someone develops symptoms and you have been in contact with them it is possible they gave you the virus while they were still asymptomatic. It will take a few days for you to develop symptoms but you also could be spreading the virus before then...

They found elastase abnormalities in blood vessels in research done at Ninewells hospital, Dundee. I seem to remember that another study said that they did not find but they selected patients carefully for the Dundee study - even when the research was published as fukuda it was the...

I will take their word for it that fatigue is the commonest problem with post polio syndrome but I think this is similar to the way the commonest symptom of ME. Very common, but not the most important. My friend has PPS from the polio she had as a child but can still exercise at a gym, go on...

They did not get the answer they wanted so they say that it was because patients did not report the symptom, not that the findings of the study are correct. Because the study did not confirm their beliefs it had to be that the questionnaires were not filled in properly. So questionnaires can be...

So the trial did not give the result we expected but we will twist the results so that we can still say our favourite treatment can do good. Because following simple recommendations for physical activity does not earn us anything.

Is this true? I have never heard of that before.

The Incline Village outbreak began with schoolchildren who had gone on a bus to a football match if I remember correctly so it was assumed it was EBV. The CDC sent brought in Stephen Strauss who was the leading proponent of long term EBV as a syndrome. He was very upset and angry when testing...

The brain stem is one of the systems they felt was wrong in ME. This sounds relevant to us. I had to look up myoclonus but it describes one of my most disabling symptoms.

Behind herd immunity is the thinking that the people dying are sick and old while the young and productive have mild disease. This completely ignores the threat of longcovid to the economy. Looking at the cold equations of their economics, the old are are drain on the system using resources and...

He was not fooled by Mikovitz or make a mistake. Mouse leukaemia like viruses exist, that is not controversial. They are the cause of a deadly epidemic among koala bears for instance. He identified ones which were X, unable to infect mice anymore and P forms which still can. He became very...

It is interesting that they found that full works disability benefits was a factor that helped everyone stay in work. Does that mean that letting people go off sick just as long as they needed to instead of forcing them to work when they were sick had a good outcome?

Not really relevant, but this infuriates me. Since CFS was invented and said to be the same as ME it has all been about fatigue. Further up the report they spoke about vertigo and this is so prevalent in ME that it was called epidemic vertigo in some places. The name change made all the myriad...