Search results

  1. Mithriel

    The Arc de Siècle: functional neurological disorder during the ‘forgotten’ years of the 20th century, 2020, Stone et al

    I think there is a subtle reference to the " arc-de-cercle" which was the arched back that Charcot decided was the cardinal sign of hysteria. http://www.richardwebster.net/freudandcharcot.html "Freud, Charcot and hysteria: lost in the labyrinth" by RICHARD WEBSTER
  2. Mithriel

    Coronavirus - worldwide spread and control

    They don't use paired sera in virology any more. They are only used if the first test is negative but the patient is still showing symptoms so a later test is done. For quite a few years now, antibody tests have been done from single blood samples for Hepatitis ABC and HIV as well as others.
  3. Mithriel

    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    Unfortunately, they have done quite a few studies now which show structural changes but they claim these are changes which make a person liable to conversion disorder. They also use them as proof that to all the things they claim as FND from irritable bowel disease to seizures are the same...
  4. Mithriel

    Health-related quality of life in patients with ME/CFS an Australian cross-sectional study - Eaton-Fitch et al Jan 2020

    I don't know if the survey was ever published, it was in the US but they were looking at weight. I was going to do it, but they asked what your weight was. It was so stupid. My weight when I became ill is the important thing not what it is after decades of illness and age is a factor too since...
  5. Mithriel

    A Unifying Hypothesis of the Pathophysiology of (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors: Wirth 2020

    https://www.ncbi.nlm.nih.gov/pubmed/15041034 2004 Acetylcholine mediated vasodilatation in the microcirculation of patients with chronic fatigue syndrome. Spence VA1, Khan F, Kennedy G, Abbot NC, Belch JJ.
  6. Mithriel

    A Unifying Hypothesis of the Pathophysiology of (ME/CFS): Recognitions from the finding of autoantibodies against ß2-adrenergic receptors: Wirth 2020

    I was involved in a study with many years ago. Since I could not influence the results the technician explaned what was happening during the test. He dripped acetylcholine on my arm and then used a doppler machine to see how much the blood vessels opened and how long it took for the...
  7. Mithriel

    Resources for help getting food during quarantine and safe handling of food

    I don't know, but all these things are packed in sterile conditions. If they weren't, people would get gastric symptoms. Samples are taken from all foods and tested for contamination. Even if the tests are for bacteria, people are covered in them. If conditions were unsanitary things like...
  8. Mithriel

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    I don't now if this is a good thing. Great if they were now thinking about ME as we know it is but if they are just calling it the same as us while using the same old ideas but now making me synonymous with chronic fatigue. That will work against us and cause even more confusion and distress...
  9. Mithriel

    CFS & fibromyalgia-like symptoms are an integral component of the phenome of schizophrenia: neuro-immune & opioid system correlates, 2020, Maes et al

    Maes seemed to be a supporter of ME. I checked the list of his papers in MEpedia. I did not look at them closely, but the ones I remember which were about why CBT is useless and immune problems in ME were all dated before 2015 when he developed his theory of Neuro-Inflammatory and Oxidative...
  10. Mithriel

    Covid-19 - Psychological research and treatment

    My autistic grandson has perked right up :) His 6 foot distance from people walking the dog is the new normal and no one is "being helpful" and encouraging, read nagging him to do things he isn't comfortable about. (The other side of the family is not understanding about autism!)
  11. Mithriel

    Coronavirus - worldwide spread and control

    Just some thoughts reading all this. Firstly, here in Scotland health care workers are being tested. Before all this started, coronavirus was tested as part of a general screening that included flu and other respiratory viruses. If the test was positive and it was clinically necessary the sample...
  12. Mithriel

    Advice on mask-wearing to protect against Covid-19

    Yes, but where can you buy a mask? Plenty on amazon but delivery is by end of April, end of May or June!
  13. Mithriel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just from being involved with the ME community since the 1980s, I get no sense that ME is associated with the severity of the initial viral infection. Post Viral Fatigue Syndromes are related to severity and some may lead to ME but for many people ME is much more insidious, gradually getting...
  14. Mithriel

    Coronavirus - worldwide spread and control

    Labs are used to getting large numbers of specimens, I don't see why there should be contamination to give false positives. Handling these are not different from any others. Scotland has been testing medical personnel for over a fortnight. My daughter drove up in her car to one of the drive...
  15. Mithriel

    The presence of overlapping quality of life symptoms in primary antibody deficiency (PAD) and chronic fatigue syndrome (CFS): Bansal 2020

    The BPS people now refer to PEM a lot but they do not mean what happens with ME, just a generic I feel bad after I do too much and it takes me longer than it used to to get over it. Lucy Chu who did a comparison of what people with ME feel after exertion and how other people see it, refers to...
  16. Mithriel

    Neurocognitive functioning in patients with conversion disorder/functional neurological disorder, 2020, de Vroege et al

    So people with an imaginary neurological disease have worse neurological function that people with imaginary diseases of other parts of the body. Groundbreaking. Oh and FND is the same as conversion disorder. :banghead::banghead::banghead:
  17. Mithriel

    Chronic Fatigue in the Context of Pediatric Physical and Mental Illness, 2020, Loades and Chalder

    The ignorance is staggering. Many of the people with ME DO NOT EXPERIENCE FATIGUE!!! I had paediatric ME but my first presentation to the medical system was an inability to pass urine (a common symptom in the Royal Free epidemic) I did not volunteer to then that I also had episodes of...
  18. Mithriel

    Human Leukocyte Antigen alleles associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Fluge, Mella et al 2020

    Since many of us worsen over time from moderate to severe, say, it is not a stretch to consider that gradual onset is actually a sudden onset which deteriorates from very mild. I wonder if hypometabolism could be a protective response to the disease rather than the disease itself. I have...
  19. Mithriel

    Coronavirus - worldwide spread and control

    I have no idea where I would buy a mask - no chance of being able to make one. I've seen pictures of stalls selling them in the far east and that is maybe the biggest difference, not attitude. I did look on amazon but they are all delivery by late April.
  20. Mithriel

    Coronavirus - worldwide spread and control

    Yes, it is strange that no one is reporting this much. The BBC is making a big thing this morning about NHS England starting to test NHS staff so that they can get back to work if they are negative but Scotland has been using drive through testing stations since last Monday. My daughter is a...
Back
Top Bottom