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  1. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    Indeed I'm outside the UK (physically at least). I wonder where Jonathan Edwards and strategist are? (Apparently both could not access the full version either) Thank you!
  2. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    That's strange. I can't see any figures. The "authors' conclusions, Background, Objectives, Methods, Results, Discussion" for me all have a lock symbol. I then have diverse options to get to unlock the locked parts or the locked full article. When I try the pay-walled options, I receive the...
  3. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    The link doesn't direct me to the full version, just the abstract and the authors' summary in alleged plain language.
  4. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    Interesting. Perhaps the "technical team" at work? (Edit: I was meaning: perhaps an IT problem.) Will you contact them? Edit: The Exercise therapy review still labeled free access and available without restrictions.
  5. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    It means that unless you have access via an institution you have to pay 6$ to "Unlock the potential of Cochrane evidence"
  6. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    (bolding and italics added) Where do you learn those things?
  7. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    We know it is possible to be both patient and doctor, Clare. Some of us ME sufferers are doctors too.
  8. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    Her reply to Keith Geraghty is screen saved. I also screen saved her first reply to Trish and her statements re accountability/ authority . Will post later. Edit: Here are the (only) ones I saved: Edit 2: Good to see that others are doing more professional screenshots. I already had...
  9. MSEsperanza

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    I would like to suggest to the organizers and attendees of the conference and to P. Fink's colleagues at Aarhus that they should read Anil van der Zee's blogpost The “X” factors of ME' http://anilvanderzee.com/the-x-factors-of-me/ @JaimeS
  10. MSEsperanza

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    edit: From J. Coyne's critique (the study was co-authored by M. Sharpe by the way): https://www.coyneoftherealm.com/blogs/mind-the-brain/danish-rct-of-cognitive-behavior-therapy-for-whatever-ails-your-physician-about-you The link to the trial provided in Coyne's blogpost doesn't work, but...
  11. MSEsperanza

    Stanford Community Symposium 2018: Fluge

    250 mg Prednisone or 40 mg Dexamethasone/ day for 3-5 days. (Standard dosage for MS is 1000 mg Methylprednislolone/day for 3-5 days). Interesting.
  12. MSEsperanza

    Stanford Community Symposium 2018: Fluge

    (from the other thread - hope it's ok to quote it here) Indeed, I think this renders all my thinking with regrad to cortisone irrelevant.... Edit: But I didn't want to amputate Andy's reply, so here's the rest:
  13. MSEsperanza

    "Etiquette-Based Medicine" (Michael W. Kahn), 2008

    I felt the urge to bump this after seeing Clare Gerada's aka Lady Wessely's (chairperson of the Council of the Royal College of General Practitioners from 2010 to 2013) arrogance and lack of empathy towards patients (see her tweets linked here...
  14. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    Anyone is saving Clare G.'s tweets? I cant't believe how arrogant and ignorant a medical doctor with this expertise and in this position can be! Could be a rich source of quotations in the category of "own goals" though. Have to take a forum break now - just leave this one here.
  15. MSEsperanza

    Sweden - RME news

    Thank you @andypants. I think it still would be interesting to know the dosage. See here: https://www.s4me.info/threads/stanford-community-symposium-2018-fluge.6037/#post-112960 In addition, as far as I know cortisone has a huge effect on metabolism. Even though I have no idea about the...
  16. MSEsperanza

    Stanford Community Symposium 2018: Fluge

    Thank you, @Inara . How high was the cortisone dosage you got? It still seems interesting to me to know the dosage the trial participants got. When I was suspected to have MS and got high dose cortisone, my neurologist tried to explain something about the blood-/brain barrier. I didn't...
  17. MSEsperanza

    Cochrane ME/CFS GET review temporarily withdrawn

    Seconding the thanks to all involved, especially Bob, @Tom Kindlon and @dave30th. Now hoping that independent media and another news agency than Reuters will spread the news in a more objective manner. And hoping to soon receive the answer "Content not available" when clicking the link to...
  18. MSEsperanza

    Sweden - RME news

    I am too slow for this - just posted on the thread on the Stanford symposium. In case anyone was/ is watching the contribution on the Rituximab trials, I copy my question over here: I know from people with RA and MS treated with Rituximab that they get high dose cortisone and antihistamines...
  19. MSEsperanza

    Stanford Community Symposium 2018: Fluge

    I have been wondering for some time - so just in case this might be relevant: I know from people with RA and MS treated with Rituximab that they get high dose cortisone and antihistamines immediately prior to the Rituximab infusion to reduce the risk of severe side effects. Does anybody know...
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